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Old 01-02-2011, 02:41 AM   #1
TroianRae
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Smile New to PDD-NOS Diagnosis.......

I'm new to the world of the Autism Spectrum.
And I'm still coming to terms with the fact that Benji has PDD-NOS.

Any advice??
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Old 01-02-2011, 02:03 PM   #2
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I can't offer any advice, but I can offer

I saw your post in the Austism and WDW thread. You are so right. While you still live in the same world you lived in prior to the diagnosis, now you are aware of exactly what that world is. As GI Joe says "Knowing is half the battle."
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Old 01-02-2011, 11:34 PM   #3
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Old 01-03-2011, 04:44 PM   #4
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My son is 6 yrs old. He was diagnosed with PDD when he was 4. How old is Benji?
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Old 01-03-2011, 04:50 PM   #5
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Originally Posted by zan65 View Post
My son is 6 yrs old. He was diagnosed with PDD when he was 4. How old is Benji?
He is almost 12.
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Old 01-03-2011, 08:24 PM   #6
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Our son is 12 and was diagnosed when he was 7. He has been to WDW 3 times and loves it. We got him a GAC so he wouldn't have to wait in long lines. He hates to wait and really doesn't like crowds. Cast members were awesome.
We are taking him on a DCL to E. Caribbean in Sept. I have been preparing him by showing him videos of the horn, muster drill, pics of stateroom, anything I can think of.
If you need to chat or more info about things just let me know.
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Old 01-03-2011, 08:30 PM   #7
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Our son is 12 and was diagnosed when he was 7. He has been to WDW 3 times and loves it. We got him a GAC so he wouldn't have to wait in long lines. He hates to wait and really doesn't like crowds. Cast members were awesome.
We are taking him on a DCL to E. Caribbean in Sept. I have been preparing him by showing him videos of the horn, muster drill, pics of stateroom, anything I can think of.
If you need to chat or more info about things just let me know.

WDW/DL is one of his obsessions/fixations. lol. I always thought it was because I raised him right. Little did I know........

He's adapted really well around WDW/DL since his first trip in 2001 (which was overwhelming - now we REALLY know why) and just became obsessed with it.

I will be looking into getting a GAC if possible at DL in March just to help out his crowd issues/rigidity/and at times, meltdowns/freak outs.

I can use all the info, help, support, whatever, with technically being new to this world.
I may have lived here for the last 9 years (he changed about age 3) but now it has a name.
PM me..........
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Old 01-03-2011, 11:31 PM   #8
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Jana, welcome! You must have had some journey to get the dx at age 12 for your DS. I'm glad that you are here with us!

Can you get a copy of the Open Mouse? There is quite a bit of info in that that could apply.

Also, if being fixated on Disney is a Spectrum Sign, we may all belong there!Keep your chin up!
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Old 01-05-2011, 02:46 AM   #9
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I suggest starting a thread on your trip and issues that may arise at Disneyland Resort. Disneyland is different than WDW in some ways for disabled persons. I cannot explain at this time everything as I have to run. Going in March to Disneyland may be a blessing or trouble depending on school breaks and Easter. During winter off season one can walk onto some lines.

My advice for you is to pick your battles wisely. My mother cannot grasp that I am too sick to get the newspaper. That is one battle I have given up on because nothing I do will change her mindset. Patience is another thing to have as at times things may be like filling a cup one drop at a time. Changes happen but so slow as to not be visible.

I can send you hugs, Mickey bars, and prayers.
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Disneyland was fun with flag retreat and pickles. I have a home here, thank you. GAC is NOT a "front of the line pass".

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Old 01-05-2011, 07:24 AM   #10
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Originally Posted by TroianRae View Post
I'm new to the world of the Autism Spectrum.
And I'm still coming to terms with the fact that Benji has PDD-NOS.

Any advice??
I'm not sure if you are speaking in terms of overall life or issue at WD. Saying that I'm assuming "life".
My best advise would be to educate yourself and your family. Read everything and ask lots of questions. Our school system has an ASD specialist that is awesome. Check to see if your's does too. They probablly do. I have to ask, did his ped suspect this ? If not I would find him a new ped. Ours would never check into and would tell me things like DD9 was "shy" or would "talk when she was ready" etc.. So I found a new ped for my kids.
Most of all just know this. You are not alone. There are many people in the same ever growing boat. If you need to chat , pm me.
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Old 01-05-2011, 10:24 PM   #11
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I suggest starting a thread on your trip and issues that may arise at Disneyland Resort. Disneyland is different than WDW in some ways for disabled persons. .
This is an excellent point.
Your other advice was also great!
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Old 01-05-2011, 11:07 PM   #12
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How would you suggest I start the thread? ???
Already did! Here it is!

http://www.passporterboards.com/foru...ent-parks.html

Jump right in!
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Old 01-06-2011, 07:14 PM   #13
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How would you suggest I start the thread? ???
I would suggest a special thread addressing all your needs. People will ask for help in planning a trip like one lady had a child with a special diet. List the type of people on the trip such as parents, boy aged XX, girl aged X In such thread you can bring up things like what the family really hates and really loves such as animals, princesses, transportation, characters, and food.

For guidance PM a moderator and they can help you find the right place and guide you.
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Mom calls to check on me and reminded me to pay the gardener. I love her so much.
Disneyland was fun with flag retreat and pickles. I have a home here, thank you. GAC is NOT a "front of the line pass".

She is gone but keeping signature. Laundry is getting done. My purpose in life is to help poor people in FL. Farewell, will miss you.
My Countdown Counting down to: Laurie's Birthday
Happy Birthday and may you have a grand day.
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Old 01-06-2011, 07:20 PM   #14
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I would suggest a special thread addressing all your needs. People will ask for help in planning a trip like one lady had a child with a special diet. List the type of people on the trip such as parents, boy aged XX, girl aged X In such thread you can bring up things like what the family really hates and really loves such as animals, princesses, transportation, characters, and food.

For guidance PM a moderator and they can help you find the right place and guide you.
I know how to start a thread. lol.

I am just new to Benji's world in the sense that it has a name and I'm trying to find out how well DL can accomodate him so we can all have a great vacation.
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Old 01-07-2011, 01:37 PM   #15
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DS 1 is is living with Asperger's. I have thought about taking him to DL but the jury is till out. Thinking about it though I think in would treat it like I do in WDW. We are very flexible and go with the flow. Just when I think I know his likes and dislikes they change. This year he was willing to go to France and china movies but he would want to wait til the end and watch the curtains close. There are a couple of things I know he would love but I can't justify forcing him to wait in a line with his anticipation growing and him becoming more vocal and upset. I also have found giving him options combined with compromise helps. I usually (try to) travel alone with my kids. at the beginning of the day, one kid picks the park, the other picks the first ride. They alternate picking rides, in the general vicinity we are in. He finally understands that all though we might not be going on his choice, we will next.

I think too I would just ask CMs for advice and/or help. I'm sure they deal with special issues multiple times during the day so don't be afraid to ask.

I have to say though I love having a kid with Autism. He has helped me see things in ways I don't think I never would have if he were "typical". I have one of those (ds2). I love him too.

I hope you have a great time!
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