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Old 03-27-2008, 01:51 PM   #1
korki-rad
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Pulmonary embulism

My MIL was just hospitalized with a pulmonary embulism. She is still planning to go to WDW with us in May, but obviously will have to take it a bit easy. We are looking into getting an ECV for her and she's staying at the GF so she will have easy access to the monorail. What other accomodations should we be looking into? I don't know much about this condition, but want to make things as easy for her as I can. She has her heart set on going and doesn't want to cancel. Any advice?

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Old 03-27-2008, 02:24 PM   #2
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Sorry, no advice. I just wanted to send best wishes and pixies for your MIL and your trip in May!
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Old 03-27-2008, 02:27 PM   #3
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BTDT, have the medications to probe it. This is what they told me.

She will want to look into compression stockings to keep the blood from pooling in the lower legs. I assume they will send her home on medication, she will want to carry the card that usually comes with it that tells what her dosage is, when last taken, and what her INR number was and the date.

If you are driving or flying, they don't recommend sitting from over 1 1/2 hours or 150 miles if driving. Do the legs exercises that they recommend that will keep blood from settling in the lower extremities. Watch the diet as many foods effect the medication--green leafies increase the effectiveness of the drug and reduce clotting, carrots decrease the effectivess. Watch for some of the stranger things--we started using olive oil and my INR went very high (this is a bad thing). The doctor who had told me it was ok, discovered that olive oil effects things big time.

Check with her pharmacist to see which over-the-counter things interact poorly with her medication. Take a supply of those that she can use.

The heat reflecting off the pavement in WDW can cause the capillaries on the front of the legs to pop. To avoid this, I wear long pants and if it is very hot, I put ice packs on the front of the legs a couple of times/day. (This hint came from the first aid station in WDW) I haven't had any problems on the last 3 trips. The EVC may be a great help in this also.

I also wear a MediAlert bracelet that lets folks know that I take anti-coagulents.

This is all assuming that she is on a medication in May. If her doctor will talk to you or the nurse educator at the hospital. Ask them what advice they have.
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Old 03-27-2008, 04:13 PM   #4
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I've had two previous DVTs (blood clots in my legs - which can lead to an embolisim), and was cleared to fly long haul to Disney only with Heparin injections before the flights - so I think the key thing is the advice your MIL gets from her doctor.

In general exercise helps once the clot has been treated - so, (again with doctor's consent), she may find some of that Disney walking will actually help her condition.

Good luck and I hope you have a wonderful trip.
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Old 03-27-2008, 11:46 PM   #5
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She should have a talk with her doctors to get plenty of advice on what to do & not do. For sure look into a length of stay ECV rental from a off site company so it is available anytime it's needed. Check the sticky posts above..
Good luck & have a wonderful vacation.
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Old 03-29-2008, 05:06 PM   #6
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Quote:
Originally Posted by Eeyore Tattoo View Post
She should have a talk with her doctors to get plenty of advice on what to do & not do. For sure look into a length of stay ECV rental from a off site company so it is available anytime it's needed. Check the sticky posts above..
Good luck & have a wonderful vacation.
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