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Old 10-16-2014, 01:57 AM   #1
ShatteredByLoss
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Question COPD - Oxygen

Hello my fellow Disney Fans,

I knew when I had a new issue crop up that this was the place to come to ask my questions.

So, a little backstory.

I recently had someone in my family diagnosed with COPD and Congestive Heart Failure. After recovering from the shock, the hospital stay and getting my family member home and settled, my mind wandered (as it normally does, like this run on sentence) to our Disney World Trip.

Oxygen, portable, in tanks is now going to be part of our daily lives. We are dealing with that. It isn't the end of the world, but it is another step in the list of things we have to accommodate for.

We have a converter that we can use for the hotel room, so that isn't an issue at the end of the day/morning we should be fine.

What is the issue, is the portable tanks. I am cringing at the thought of trying to have enough oxygen for a ten day trip to Disney World. IF I can even get that many, transportation and storage is going to be a nightmare in a hotel room.

Has anyone traveled to Disney World from out of state and needed oxygen? How did you do it? Hmm.. What I mean is, did you obtain oxygen while in Florida? Or was there something else you did to make your trip go easier?

The logistics are boggling my mind and it still just may be the shock of it all, but I can't seem to wrap my head around how I can work this out to make it happen.

Also, has anyone traveled to Disney World while on oxygen and actually ridden any rides? I am thinking of things like the people mover or spaceship earth. Something nice and relaxing that she would enjoy. It's a small world, that type of thing. Was there an issue bringing the device onto the vehicles?

Any and all help would be appreciated.

I am feeling a little overwhelmed at this point and I'm really not sure what direction to go in.

~ Loss
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Old 10-16-2014, 09:12 AM   #2
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Can't advise you on specifics but have seen various people with portable oxygen touring the parks and riding rides.

Have you considered an ECV rental with rack for the oxygen? That might be really helpful to make touring much easier and less wearisome.

Worries about how to modify one's accustomed travel style can be unsettling until you get the needed info, try it out and discover it is easier than you feared. Hope that will be what you find to be the case.
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Old 10-16-2014, 09:26 AM   #3
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I too have seen oxygen in the parks and also seen a delivery of the larger tanks to the resort. I am not sure how soon you are travelling, but I know that it can be worked out.
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Old 10-17-2014, 01:25 PM   #4
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Thank you Her Dotness and Hugmonster for replying.

She does have an ECV already and we are going to be adding an oxygen holder to it. Great minds think alike on that one!

It is comforting to know that somewhere down there oxygen can be delivered to the resorts. I think that is going to be our best option.

I am just going to have to roll up my sleeves, grab a google page or two, do some searching for information and start dialing to see who can assist us in/around Disney World and the resorts. Someone can deliver oxygen and refill tanks, somewhere. I just have to find them. I always did like adventures. This is just another one.

Thank you both again, I appreciate it.

As for anyone else that might have stumbled across this thread, if you use oxygen at Disney World, I'd love to speak with you about your experiences if you are willing to share. Feel free to PM me anytime.

Take care everyone,

~ Loss
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Old 10-17-2014, 05:37 PM   #5
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I would start by talking to the company that is supplying your family member's oxygen tanks at home. I'd imagine they'd be able to at least get you pointed in the right direction. Then if they cant help I'd try calling Disney or even Centra Care or the hospital in Celebration.
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Old 10-17-2014, 08:45 PM   #6
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It occurs to me ... Disney has an entire department meant to help Disabled guests get the most out of their stay; they might be able to point you at an O2 supplier that can deliver to the resorts. Or at least, have a better idea of local-to-WDW resources to seek a referral from.
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Old 10-20-2014, 11:35 AM   #7
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Call the people you use now, My Dad was on oxygen & they set it all up for him. They met us at the room on check in day & set him up wit all he needed. He filled his portable tank from the room everyday. You can also call some of the medical places that supply ECV's they also may have oxygen of can steer you to who does. I do see http://www.caremedicalequipment.com/ does have oxygen..
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Old 12-05-2014, 05:30 PM   #8
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my mom has a portable compressor so you don't have to mess with tanks. You just have to make sure the battery stays charged.
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