As of January 1, 2019, we have closed our forums. This is a decision we did not come to lightly, but it is necessary. The software our forums run on is just too out-of-date and it poses a significant security risk. The server software itself must be updated, and it cannot be without removing the forums.
So it is with a heavy heart that we say goodbye to our long-running forums. They came online in 2000 and brought together so many wonderful Disney fans. We had friendships form, careers launch, couples marry, children born ... all because of this amazing community.
Thank you to each of you who were a part of this community. You made it possible.
And a very special thank you to our Guides (moderators), past and present, who kept our forums a happy place to be. You are the glue that held everything together, and we are forever grateful to you. Thank you aliceinwdw, Caldercup, MrsM, WillCAD, Fortissimo, GingerJ, HiddenMickey, CRCrazy, Eeyoresmom, disneyknut, disneydani, Cam22, chezp, WDWfan, Luvsun, KMB733, rescuesk, OhToodles!, Colexis Mom, lfredsbo, HiddenMickey, DrDolphin, DopeyGirl, duck addict, Disneybine, PixieMichele, Sandra Bostwick, Eeyore Tattoo, DyanKJ130, Suzy Q'Disney, LilMarcieMouse, AllisonG, Belle*, Chrissi, Brant, DawnDenise, Crystalloubear, Disneymom9092, FanOfMickey, Goofy4Goofy, GoofyMom, Home4us123, iamgrumpy, ilovedisney247, Jennifer2003, Jenny Pooh, KrisLuvsDisney, Ladyt, Laughaholic88, LauraBelle Hime, Lilianna, LizardCop, Loobyoxlip, lukeandbrooksmom, marisag, michnash, MickeyMAC, OffKilter_Lynn, PamelaK, Poor_Eeyore, ripkensnana, RobDVC, SHEANA1226, Shell of the South, snoozin, Statelady01, Tara O'Hara, tigger22, Tink and Co., Tinkerbelz, WDWJAMBA, wdwlovers, Wendyismyname, whoSEZ, WildforWD, and WvuGrrrl. You made the magic.
We want to personally thank Sara Varney, who coordinated our community for many years (among so many other things she did for us), and Cheryl Pendry, our Message Board Manager who helped train our Guides, and Ginger Jabour, who helped us with the PassPorter-specific forums and Live! Guides. Thank you for your time, energy, and enthusiasm. You made it all happen.
There are other changes as well.
Why? Well, the world has changed. And change with it, we must. The lyrics to "We Go On" for IllumiNations say it best:
We go on to the joy and through the tears
We go on to discover new frontiers
Moving on with the current of the years.
We go on
Moving forward now as one
Moving on with a spirit born to run
Ever on with each rising sun.
To a new day, we go on.
It's time to move on and move forward.
PassPorter is a small business, and for many years it supported our family. But the world changed, print books took a backseat to the Internet, and for a long time now it has been unable to make ends meet. We've had to find new ways to support our family, which means new careers and less and less time available to devote to our first baby, PassPorter.
But eventually, we must move on and move forward. It is the right thing to do.
So we are retiring this newsletter, as we simply cannot keep up with it. Many thanks to Mouse Fan Travel who supported it all these years, to All Ears and MousePlanet who helped us with news, to our many article contributors, and -- most importantly -- to Sara Varney who edited our newsletter so wonderfully for years and years.
And we are no longer charging for the Live Guides. If you have a subscription, it's yours to keep for the lifetime of the Live Guides at no additional cost. The Live Guides will stay online, barring server issues and technical problems, for all of 2019.
That said, PassPorter is not going away. Most of the resources will remain online for as long as we can support them, and after that we will find ways to make whatever we can available. PassPorter means a great deal to us, and to many of you, and we will do our best to keep it alive in whatever way we can. Our server costs are high, and they'll need to come out of our pockets, so in the future you can expect some changes so we can bring those costs down.
Thank you, thank you, thank you for your amazing support over the years. Without you, there's no way us little guys could have made something like this happen and given the "big guys" a run for their money. PassPorter was consistently the #3 guidebook after the Unofficial and Official guides, which was really unheard of for such a small company to do. We ROCKED it thanks to you and your support and love!
If you miss us, you can still find some of us online. Sara started a new blog at DisneyParkPrincess.com -- I strongly urge you to visit and get on her mailing list. She IS the Disney park princess and knows Disney backward and forward. And I am blogging as well at JenniferMaker.com, which is a little craft blog I started a couple of years ago to make ends meet. You can see and hear me in my craft show at https://www.youtube.com/c/jennifermaker . Many PassPorter readers and fans are on Facebook, in groups they formed like the PassPorter Trip Reports and PassPorter Crafting Challenge (if you join, just let them know you read about it in the newsletter). And some of our most devoted community members started a forum of their own at Pixie Dust Lane and all are invited over.
So we encourage you to stay in touch with us and your fellow community members wherever works best for you!
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I have RA too. Thankfully the only place I don't suffer from it is in WDW. Just being there makes me feel better. Most trips I have trouble remembering to take my medications because I feel like I don't even need them. I don't really understand why sitting at home and reading I book can leave me sore for days but walking all over WDW for a week and I feel great.
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I have RA too. Thankfully the only place I don't suffer from it is in WDW. Just being there makes me feel better. Most trips I have trouble remembering to take my medications because I feel like I don't even need them. I don't really understand why sitting at home and reading I book can leave me sore for days but walking all over WDW for a week and I feel great.
Well, the clinical reason is that movement is better for arthritis than staying in one position for a long time.
THe magical reason is that EVERYTHING is better at WDW!
No advice.............. But hope you have a great trip!
My dad has RA and unfortunately I don't know that he will ever agree to a Disney trip; we did a half day at sixflags last year and he was bed ridden for days........
No advice.............. But hope you have a great trip!
My dad has RA and unfortunately I don't know that he will ever agree to a Disney trip; we did a half day at sixflags last year and he was bed ridden for days........
I'm so sorry to hear about that. He sounds like the type of person who would really need and ECV to tour Disney.
I have to say, though, that the warm weather is GREAT for those with arthritis.
Thanks everyone. I appreciate the responses and tips.
Quote:
Originally Posted by olendl01
I have RA, PA and OA....it's a lot to deal with especially while at vacation. I take Enbreil shots once a week to manage mine. Not sure what your RA Dr has planned for you. I agree with MMD on the rest, lots of rest. Don't over do it. You will find it worse as the day's progress. I can generally tell that I need to rest based on how my hands feel, if they start swelling, then that is a sign my joints are bothered and I rest then. I find the early mornings are my best and the afternoons are my worst. Evenings are great for me if I rest in the afternoon otherwise the fatigue will get to me. I also drink Acai juice. 2oz in the morning and 2 oz in the evening. I don't know why but it helps I also eat/drink pineapple juice, it is said to help with joint swelling....so perfect excuse to get a Dole whip!
I started metho but not sure it's going to work. The fatigue is one thing that really bothers me the most. It's still a work in progress to realize that I can't just keep going doing things. I'm getting better at it though.
Quote:
Originally Posted by Kynna
I'm sorry to hear of your diagnosis but I'm glad you have answers.
I have RA among other things. I think the main thing while traveling and in life in general is that doing a little bit of what you love is better than not doing it at all. I used to stress about going out and doing the things I did before it got bad because I couldn't handle the disapointment of not keeping up with others.
I've found ways of particpating in things without depleting my energy. Like volunteering for the sit down tasks for PTA or coloring with my kids when I just can't play ball with them.
At times it feels like a blessing having a built in priority gage. I only have energy for the things that are truly important like family time at WDW!
I hope you find balance and a medication plan that works for you very soon!
Thank you. Great tips!
Quote:
Originally Posted by jhoshowski
I have Rheumatoid Arthritis and Fibromyalgia (as you probably know) and I haven't had too much trouble at WDW. I try to take it slow - no running around all the time, enjoy my surroundings, stop to smell the roses. Sometimes if it gets to be too much, we head back to the room and I lie down for an hour or two while DH takes the boys swimming. One thing that REALLY helps me is early nights. We try to be back in the room by 8 PM or so, unless there is a parade, show, or special party we want to hit. I have found that a good night's sleep plays a big part in feeling good.
Good luck!
We try to take things slower and took breaks to sit down/grab a bite to eat/or snack. It gave me time to rest a little and not have to be on my feet which did help. Thanks for the tips.
I went to see a new rheumy yesterday and all I got was more questions and confused. This one says that you can't have RA and Hashi's together (they don't exist together). Also, they say that hashi's is causing everything. Then why did all of this start 2 years ago when I've had Hashi's since 2005? Seems strange. And then the big kicker.....according to him you can't have RA and NOT have a positive RA Factor.
I went to see a new rheumy yesterday and all I got was more questions and confused. This one says that you can't have RA and Hashi's together (they don't exist together). Also, they say that hashi's is causing everything. Then why did all of this start 2 years ago when I've had Hashi's since 2005? Seems strange. And then the big kicker.....according to him you can't have RA and NOT have a positive RA Factor.
I don't know who to believe and what to do now.
I am so sorry that you are going through this.
Sometimes, while the people in the white coats go back and forth about a diagnosis, it can be best for the individual to focus on the symptoms and how to deal with them.
I know that having a diagnosis might help to plot a course of treatment and anticipate what may be for the future, but there are SO many variables within each diagnosis that, when you get right down to it, every person has his own unique version of whatever it is they have.
Are you able to isolate your main limitations or problems? Can you do something to make them a little less of an issue?
Again, I am so sorry to hear that you are going through this and, at least, we are here to help!
When I was getting sick with Fibro, It took years to get a correct diagnosis..
Fibromyalgia was almost unheard of 15 years ago & I was tested for everything under the sun. I was also told "it was all in my head" How can pain everywhere be in your head?
I focused on dealing with what was going on with my body. A name came along a few years later when I found a doctor that totally understood what was going on & knew all about Fibromyalgia.
Hang in there & take care of yourself. Named or not you still need to focus on what your body is telling you..
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Thanks. I only went to see the new one because I wasn't all that thrilled with the office set up at the current rheumy's office. Overall I'm satisfied with his bedside manner and care of my RA. He came highly recommended by my internist. Plus he's close.
I told the new one what my problems were (major stiffness in the morning and any time I sit), can't get comfortable when I go to bed/wake up in pain/can't go back to sleep because of the pain, fatigue. He told me those weren't the symptoms of RA but Hashi's. I've also found out through my research this weekend that thyroid patients are 3 times more likely to develop RA.
I suffered almost a year with nothing more than being told "well, I think you have the beginnings of RA but don't want to send you to a rheumy just yet." And being told to take tylenol or motrin for the pain which did little if anything.
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Sometimes if it gets to be too much, we head back to the room and I lie down for an hour or two while DH takes the boys swimming. One thing that REALLY helps me is early nights. We try to be back in the room by 8 PM or so, unless there is a parade, show, or special party we want to hit. I have found that a good night's sleep plays a big part in feeling good.
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