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Old 05-15-2014, 08:30 AM   #1
wheezie
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Sun sensitivity?

For some reason, it seems the older I'm getting the more sensitive I am to the sun. It could be my blood pressure pill, but I've been on that for years and haven't noticed this much sensitivity until this past year or so. I plan to ask the dr. when I go for my physical later next month what could be causing this.

Anyway, anyone here experience sun sensitivity? I break out in a rash if I'm out in the sun for more than 5-10 minutes. As you can imagine, I'm a little worried about our Disney trip. My arms get all bumpy (rough little bumps) and I'm burning very easily-even w/ sunscreen on. (50 spf) Never mind the flu like symptoms that come after getting burned-chills, body aches, etc-although that could be the fibro. Dh just looked at me the other night and said, "WHAT are you going to do in Disney??"

Long sleeves are always an option, and luckily we'll be there in November so hopefully it won't be too bad. I just don't want to be in long sleeves all the time, ya know? We planted our garden last night, and sure enough by the time I got back in, I had bumps all over my arms. *sigh*
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Old 05-15-2014, 10:07 AM   #2
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Without knowing the drug, it is hard to say for sure, but it is likely drug-related. BP drugs, Lasix, some antibiotics and many other common drugs can provoke sun sensitivity. And, yes, you could be getting a reaction now even though you didn't have a problem before . (Info coming from my husband, RN.) You need to mention this to your doctor, of course, but also wear a hat, put on lots of sunscreen, and cover up as much as possible when out in the sun. Companies like L.L. Bean, REI, etc. sell special clothing that helps protect you (regular t-shirts actually let quite a bit of sun through). Just enter "sun protective clothing" in the online search box. Not all of it is long-sleeved.
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Old 05-15-2014, 10:43 AM   #3
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It's lisinopril.
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Old 05-15-2014, 10:51 AM   #4
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If you have Fibro you may want to get your ANA checked and be tested for Lupus. I have Lupus and have sun sensitivity. I where a baseball cap, sun glasses, sun screen and 3/4 length sleeved shirts. I buy a good quality sunscreen too.
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Old 05-15-2014, 12:54 PM   #5
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Hmm, that's interesting. I'll have to mention that at my dr appt.

What would be a good quality sunscreen?

Thanks!
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Old 05-15-2014, 01:18 PM   #6
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I asked my dermatologist and she suggested Orgins. Yes, it is pricey. I am the only one who uses that one. I also buy Nutrogena and I think it works just as well. Not sure if you wear make-up or not in the parks. But, I mix a little foundation with a sport sunscreen (sweat proof) and wear that and it helps keep my make-up on too.
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Old 05-15-2014, 02:23 PM   #7
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My mother has the same problem with the sun - if she's out in it for any length of time, she gets all those little red bumps. She uses regular sunscreen (Coppertone Sport brand actually) and she gets the spray variety and is very good with applying it frequently. The occurrence of the bumps has lessened for her and she still wears shorts and tank tops outside.
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Old 05-15-2014, 02:43 PM   #8
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I have the same sensitivity and I take lisinopril as well. Regular long sleeve shirts don't keep the sun's rays out as well as the clothing from EMS. I like to reapply sunscreen every 1-2 hours depending on sun. Good luck.
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Old 05-15-2014, 11:50 PM   #9
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I have sun sensitivity both on its own as well as a side effect of medication I take. In addition, I get allergic-like reactions to almost every sunscreen I have tried -- some are immediate rashes, others only show up as a rash when exposed to the sun while wearing the culprit sunscreen.

The sunscreen I use now is the brand Cliniderm (in Canada) / Vanicream (in the USA). I use as high an SPF as possible.

When out in the sun for other than the briefest time I also wear sun protective clothing with a UPF of 50+. See this page for a good explanation of what that means: UPF Ratings: Sun Protective Clothing - Coolibar

Companies like Coolibar (who specialize in sun protective clothing), REI, LLBean, and others sell quality, reputable, sun protective clothing with proper UPF ratings.

After much experimenting to find what works *for me*, this is what I do at Disney: (all UPF clothing is rated UPF 50+, so I will just call it UPF)

I dress in layers.

I wear a wide-brimmed UPF hat. It has an under-neck tie, so I can just slide it off my head and let it hang down my back when I go inside a building. It provides protection for the top and sides of my head, whcih it directly covers, and added protection for my face and neck. It has a dark underbrim to help reduce glare-bounce from surrounding surfaces onto me.

(I wear prescription glasses, and over those I wear SolarShields brand UVA and UVB-blocking sunglasses -- they are bulky and not "fashionable" by any stretch of the imagination, but I do not care as they are excellent at blocking out UV and reducing the amount of light that gets through)

I wear a first top normal top. In hot weather, it will be short-sleeved. it can be made out of whatever I want it to be, including just plain cotton, whcih is nto a great sun-blocker. This way, I can bring multiple tops for this layer to change out over the days.

Over the top, I wear a VERY VERY lightweight UPF cover-up. it is long-sleeved and it has a hood (I don't usually use the hood, but sometimes, like inside a cool building, I may). It is about hip-length and has a drawstring at the waist. The one I like is this one from Coolibar, which comes in a variety of colors, the one I have is a grey which goes with just about everything: Shoreline Cover Up: Sun Protective Clothing - Coolibar

The long sleeve top is light enough that it does not add heat. In fact, I find my skin feels very hot, really almost/kind of burning, in the sun WITHOUT it, but is nice and cool when I am wearing it.

For pants, at Disney I wear long UPF pants. My current ones come from LLBean and REI (those ones I think are ExOfficio brand). They are lightweight and very comfortable.

By wearing sun protective long layers, I only have to worry about sunscreen on exposed skin, which is much less skin than it otherwise would be. And it means less chance of allergic reaction to sunscreen or rashes from the sun -- and if I do get reactions, it is on much less surface area, which means I am more comfortable then I would be. e.g. if it is only my hands itching like crazy that is a lot better than my hands AND my arms AND my legs. Worst case, i could even wear UPF gloves...

Another advantage of a long sleeve outer layer is that while it keeps me cool in the heat, it is GREAT to have inside cooll buildings, where it keeps you comfy ! :-)

Anyhow, hopefully this gives you some ideas.

-SW
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Old 05-16-2014, 09:17 PM   #10
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Wow, great advice you guys! I appreciate it.
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Old 05-22-2014, 08:35 AM   #11
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For those wondering if a drug they are taking might be the problem, here is a trustworthy site to check. MedlinePlus: Drugs, Herbs and Supplements: MedlinePlus But still talk with your doctor; there may be a substitute you can use if you spend a lot of time outdoors.

We use high SPF sunscreens by Neutrogena, which I buy at Costco in a two pack. Be sure you are using enough and rub it in if the directions say to do so. Try to put it on about 30 minutes before you go out to give it time to "set" and become most effective. Don't forget the backs of your hands, the tops of your feet if you are wearing sandals, and your ears!
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