The Official #$@% Cancer Trip: It's All About Mom PTR/Live-TR - Page 8 - PassPorter - A Community of Walt Disney World, Disneyland, Disney Cruise Line, and General Travel Forums
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Glad it's all going OK. Re the neuropathy - any way to call your mom's doc and see if they can call in her an RX of gabapentin (gab is generic, brand name is neurontin)? That's what my mother took for hers. I think there is a drug store around there that will deliver to you. You can ask at the concierge desk.
Sounds like a great trip,Mitch the exception of the worsening neuropathy. When she gets back home, see if F-C has a physiatrist who specializes in breast cancer rehab. They can set her up with a PT program to try to help with some of that.
I'm not surprised you're tired - just reading the detail from that day has made me feel tired!
yeah. we are doing a lot. and when she goes to bed, i do other things. because i'm all like 'I'M IN DISNEY WORLD!' i sort of stopped that today, finally.
Quote:
Originally Posted by DMA
What a wonderful day. Glad you made it to M. Paul, and that your mom is enjoying the food!
i'm SO GLAD she's enjoying food. she needs to gain weight and also be happy. this trip is helping with both.
Quote:
Originally Posted by Colexis Mom
You've been having some great eats! I don't blame you for being exhausted!
yeah. i basically eat and run. it is an odd combination.
Quote:
Originally Posted by lauriep
Your mom definitely has an appetite! You really attacked those food booths and then M Paul on top of it! Sounds like a good day. FYI: If you tell the CMs that your mom can't walk the ramp at the HC entrance to board Spaceship Earth, you can use a manual wheelchair to get her up to the vehicles. A kind CM even pushed me up on my last trip, although I do think this is against the rules.
I just have to add: Tzatziki Martini? So, a garlic-cucumber martini? Okaaaaay.....
as i will share in a future update: yeah. i learned today that i need to advocate for her more with regards to 'no really, she CAN'T walk'.
and there was no garlic in the martini. it was cucumber vodka, some kind of greek yogurt liqueur, and a dill garnish.
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Sounds like your mom is really enjoying a lot of the food options. That's wonderful!
Sent from my iPhone using Tapatalk 2
i'm super glad, too! thought today she decided: no more pork. she had a chicken aversion and doesn't really like fish, so she's been eating a lot of pork. i'm hoping i find something for her tomorrow.
Quote:
Originally Posted by Hugmonster
Glad you are as tired as Mom.
i'm not happy about it! ha!!
Quote:
Originally Posted by Straitlover
Glad it's all going OK. Re the neuropathy - any way to call your mom's doc and see if they can call in her an RX of gabapentin (gab is generic, brand name is neurontin)? That's what my mother took for hers. I think there is a drug store around there that will deliver to you. You can ask at the concierge desk.
i will ask about that tomorrow. though tomorrow is our last day, she's then flying down to miami to spend the weekend with her brother, so that may help (i am concerned about that plan. i was from the beginning. but she thinks i'm stubborn. and i know where i got it from!) thanks!!!
Quote:
Originally Posted by Cam22
You two really are powering on! Lots of fun food on yesterday's agenda. Glad you were able to enjoy Illuminations.
no, she is powering on! i keep being all like 'we don't have to X, Y, or Z' and she's like 'yes we do'. so we have been.
Sounds like a great trip,Mitch the exception of the worsening neuropathy. When she gets back home, see if F-C has a physiatrist who specializes in breast cancer rehab. They can set her up with a PT program to try to help with some of that.
she already has weekly PT. she arrives home on monday and has PT on tuesday. and starts radiation on wednesday.
again, i now know where i get...a lot of me...from.
i woke up around 7am and decided to go back to sleep because she was not up yet. she came out into the living area at around 7:45 and woke me. she had the same pink bag in her hand that had once contained the shirt i got her. she shook it at me and was like 'i got you a present'. so i sat up and took the bag.
note: i gave up early on the whole 'one present a day' plan. because she's trying really hard to not only not make me spend any money on this trip (i've been out of work for almost seven months) but also actively trying to get me to spend HER money (she is afraid she is going to die and all of her savings will go to her husband and then his kid.) she actually said to me--in epcot, in morocco on day two--'you're not doing a very good job of spending my money here'. but i CAN'T. i just can. not. it's not my nature.
anyway. so i opened the bag.
flashback to the day before. we are walking to the land pavillion and we pass a woman on a bench. and she has a food and wine fest dooney and bourke bag. and i stop and am like: that's an awesome bag! because it was, and people like to hear when things are awesome. right?
so that night, when she sent me around the world and insisted on going back to the room alone, she instead scooted all the way into future world (from france) and found the bag and bought it for me.
i like the bag. i more than love the amount of effort she put into it.
and that's all i'm going to say about that.
so because of the whole sleeping in and opening presents--and then waiting for the bus--we arrived at AK a little late. which sort of threw everything off. by the time we got through the gate, it was 9:53am. i know this because we wanted to make the 10am lion king show. and there was just no way at that point. animal kingdom is stressful for me with her, as she wants to see ALL OF THE SHOWS. and because of distance and start/end times and run times, you just can't.
so instead we started the day with tough to be a bug, which worked out perfectly time-wise and was super, super accessible. yay accessibility! (though she did rabbit-speed through the queue. i jogged.)
the new plan was to do the 11am lion king, but mom decided that she'd be too hungry by the time it was over, and instead wanted to do the 10:45 flights of wonder show, followed by lunch at flame tree, followed by the noon lion king.
if anyone reading this understands time and distance, they will get why this is insane. but we made it. here's how:
she scooted from flights of wonder to flametree SO FAST. i briefly lost her. upon arrival (after pausing for ten whole seconds to watch the macaws take flight) i found her studying the menu. she told me to get one rib platter for the two of us, and she scooted off to get a seat. so i did.
she ended up loving the ribs, in no small part because of the spicy bbq sauce i brought back from the condiment station. she currently loves spicy things, so it was a good choice.
by the time we left flametree it was 11:38. yes, i know this. this is how close attention i was paying to time at this point. but i had to go to the bathroom. i absolutely had to. she was scooting at rabbit speed, i was jogging behind her, and heather (our heather, who has a name here but i forget what it is because she is just heather to me) was messaging me that she and her friend were going to meet us at lion king (yay! goal of 'see heather' achieved!) i sent mom ahead and stopped at the old original africa restrooms (because i didn't know that there were new ones near the new theater. whoops.)
when i arrived at the lion king, almost everyone was inside, and a girl i'd never seen before was waving at me and calling my name--heather's friend, who was sent out to bring me in. apparently they made mom park her scooter outside and walk in, which she can't do. heather helped her get to her seat, and then after the show insisted on a wheelchair to get her back out. which was super fantastic.
i love the lion king, and being in the second row--on the floor--was also super awesome.
we then all went on KS together, and i saw more animals than i have ever seen before. i credit the fact that i did not have a camera.
after ALL of that was over, mom decided she was tired and needed to go back to the room.
and then the second part of the day happened. but i have decided that i am tired, and cannot write it right now.
stay tuned for yesterday part two, tomorrow! (or the next day. this whole live trip report thing is HARD!)
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Oh wow, the bag is such a sweet present! Sounds like your mom is really enjoying her time and I love how she's scooting around, leaving you trailing at times!
This is why I only do some very short updates while we're at Disney, as I find I just don't have time for full live updates. I have no end of respect for those of you who manage to do that.
You're doing amazing with the live reports. I can only do them because I travel alone. I'd never be able to do it on a trip like this one! It's great that you saw Heather! If you ever need an advocate at Disney, Heather is the one. She'll speak right up and also knows the ins and outs of what can and can't be reasonably done for you.
Yeah, the live reports in much detail do wear a person out. I learned that last year when I finally realized that I was spending my traditional R&R time of an afternoon writing, rewriting, proofreading, etc. Decided I was not doing that much live updating this year......probably.
I am simply delighted to hear that the trip is going as your mom hoped. That's a pure marvel. She must be massively determined to keep going and have an ironclad constitution besides. Good to hear as well that her appetite seems to be recovering from the weirdnesses of chemo.
Now, if only you can survive all that jogging to catch up, huh?
__________________
“People say nothing is impossible, but I do nothing every day.” —Winnie-the-Pooh
What an awesome present!! I also love how your mom gets around on that scooter!! She is like a race car driver!!! I think you are doing great with your live reporting!! You two are wearing me out just thinking about how much you guys got done so far!! Wow!!
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Glad you had a great time at AK and met up with Heather! 
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