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Old 06-15-2012, 01:14 AM   #46
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I hope he's doing better!
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Old 06-16-2012, 09:10 AM   #47
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Thank you so much for all the prayers and pixies! I cannot say enough how much my family and I appreciate them. I'm sorry that I'm not answering everyone individually, but as you can imagine things have been very hectic and I've had limited time to get to the computer.

Patrick is home and hopefully on the mend. We had one small bleeding instance yesterday, but it may have been "left over" which he coughed up. We were able to get him to our regular pediatrician just for "peace of mind" and she felt that he is healing okay now. We're not out of the woods exactly, because bleeding can typically happen around day 10. They're calling his rupture a major "fluke" because it's really unheard of before day 10.

In the meantime, we've spent plenty of time snuggeling on the couch, playing board games, watching TV, drinking LOTS of fluids and eating breakfast (scrambled eggs, pancakes, homemade mushy french toast) for breakfast, lunch and dinner. After his, he may never want breakfast foods again for a very, very long time.

We have another appointment on Monday with our pediatrician to check his scars, and to get another CBC. Then two weeks from Tuesday with the ENT to make sure everything has healed.

I'm trying really hard to not be a complete wreck, but lack of sleep is starting to get really tough. Coach and I have decided to rotate nights because we have to wake Patrick up every four hours to give him something to drink (have to keep his throat wet) and every six to administer his medicines. For now, we've been told to keep him on the Tylenol 3 and the Zofran. Hopefully by Monday we can start to drop him down to regular Tylenol. This will also mean we'd get to drop the Zofran.

The other two have been so great with thier brother. They've made a point of playing games, asking how he's feeling and just generally being gentle with him. They've also saved their requests to swim for when Patrick is napping because they don't like having to leave him out, and the doctors have strongly advised against him being in the pool - even just floating . Poor guy - looks like it may still be a week before he can swim for the first time this summer.

Through all this, I've been very thankful that he's going to be okay. Our target date is getting through June 18th without any more bleeding then we'll truly be in the clear.
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Old 06-16-2012, 09:34 AM   #48
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Old 06-16-2012, 11:33 AM   #49
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Glad to hear he's been doing better. It's getting close to June 18!
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Old 06-16-2012, 01:44 PM   #50
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Continued pixies!
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Old 06-16-2012, 04:30 PM   #51
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Continued
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Old 06-16-2012, 04:50 PM   #52
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Glad he's at home and healing. Sending pixies that he is completely healed soon and that the rest of your summer is stress and sickness free!
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Old 06-16-2012, 05:04 PM   #53
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Continued I can only imagine how exhausted you are. Hang in there sweetie!
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Old 06-16-2012, 06:59 PM   #54
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Oh gosh, Melissa! I'm sorry I haven't rung in until now...although I read your update when you posted it. (Both my kiddos got strep this week and then I got it, too! Nothing compared to what you're going thru, though!)

Anyway, I can't imagine the roller coaster of emotions you & Coach must have been thru when you took Patrick to the hospital. I'm so glad it was taken care of quickly. Thank goodness!

And huge kudos to Nolan & Cullen for being so good with their brother and being so thoughtful about making sure he doesn't feel left out. You've got a great family there!

Sending you lots of good thoughts & wishes for continued recovery!

Hugs,
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Old 06-16-2012, 07:36 PM   #55
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for no more bleeding. Hope Patrick is feeling better soon.
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Old 06-16-2012, 09:06 PM   #56
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Bless you heart honey. What an exhausting experience. One quick question - would a cold mist vaporizer allow y'all to get the sleep you need and still keep Patrick moist enough? If you put it right next to the bed he'd get the full blast from it and since it's cold mist and not hot steam it isn't dangerous for kiddos.
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Old 06-16-2012, 11:43 PM   #57
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I am so sorry you've had such a scary time with Patrick! Patrick and you are in my thoughts!
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Old 06-17-2012, 09:07 AM   #58
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Old 06-17-2012, 05:10 PM   #59
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It is wonderful how the other boys are sensitive to Patricks feelings. Continued ixies:
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Old 06-17-2012, 09:24 PM   #60
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Quote:
Originally Posted by dutchdisneyfamily View Post
Continued I can only imagine how exhausted you are. Hang in there sweetie!
Monday can't get here soon enough! Thankfully, his appointment is for 10:50 tomorrow morning.

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Originally Posted by 2Peanuts View Post
Oh gosh, Melissa! I'm sorry I haven't rung in until now...although I read your update when you posted it. (Both my kiddos got strep this week and then I got it, too! Nothing compared to what you're going thru, though!)

Anyway, I can't imagine the roller coaster of emotions you & Coach must have been thru when you took Patrick to the hospital. I'm so glad it was taken care of quickly. Thank goodness!

And huge kudos to Nolan & Cullen for being so good with their brother and being so thoughtful about making sure he doesn't feel left out. You've got a great family there!

Sending you lots of good thoughts & wishes for continued recovery!

Hugs,
Carol
Carol, thank you! I know you've had a lot on your plate lately too! I keep telling myself that this too will pass, but I'm getting pretty impatient to see a glimpse of my overly active rambunctious and smiley little boy...we haven't seen that side of him in quite a while.

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for no more bleeding. Hope Patrick is feeling better soon.
Thank you!

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Originally Posted by GATechGal View Post
Bless you heart honey. What an exhausting experience. One quick question - would a cold mist vaporizer allow y'all to get the sleep you need and still keep Patrick moist enough? If you put it right next to the bed he'd get the full blast from it and since it's cold mist and not hot steam it isn't dangerous for kiddos.
Thanks for the suggestion - after a huge hunt, we finally found a cool mist vaporizer and are trying it (so far so good)! Thank you!

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I am so sorry you've had such a scary time with Patrick! Patrick and you are in my thoughts!
Thank you very much Cam!

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Quote:
Originally Posted by kangelop View Post
It is wonderful how the other boys are sensitive to Patricks feelings. Continued ixies:
Thank you!
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