The Official #$@% Cancer Trip: It's All About Mom PTR/Live-TR - Page 3 - PassPorter - A Community of Walt Disney World, Disneyland, Disney Cruise Line, and General Travel Forums
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Will she have her compression garment(s) by the time you leave? If not, I personally would not fly without them. You could either drive or take the train (regular or auto train). If you take the regular train, you could get Quicksilver to pick you up from the station or take a cab to your resort.
FYI - It took me a week to get my sleeves after measurement, and mine were off the shelf ones, not custom.
I hope you have a great trip. I've been wanting to plan one for myself (had my bilateral mastectomy July 2014 and implant exchange Dec 2014, luckily no chemo required), but it just hasn't worked out yet. My sis and I are doing our #$@% Cancer cruise in January though . She was diagnosed before me, right after we got back form our Sept 2013 cruise.
Pixies for your Mom! My Dad has had lymphedema in his left arm since the late 80s after the removal of the lymph node under his arm and has flown many, many times (most to Disney twice a year)! I hope it all works out!
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So just checking in........Understand that you have some worries 'cause I know I would! As long as you are both flexible and understanding, it will all work out. The most important thing is that the two of you will be together at WDW; everything else is "bonus"!
agreed! and yes, we both plan to be VERY flexible. me more so than her, i believe. which is fine.
Quote:
Originally Posted by chezp
Lots of that everything works out for the trip. I'm a great believer in the "if you think it, you can do it" in terms of positive thinking, so if your mum's determined to do all of that, then hopefully that will count for a lot and will help her.
thanks!!!
Quote:
Originally Posted by Her Dotness
About the lymphedema diagnosis, DO NOT worry about that. It's not comfortable if her arm or trunk is noticeably affected, but caught early as hers has been, lymphedema can become quite manageable with daily attention given to wearing her sleeve and a gauntlet if both are recommended. Btw, by "not comfortable" I mean exactly that--just enough of an annoyance that you're aware of some mild discomfort.
Wearing compression garments as recommended along with professional lymphedema massages weekly for a few months was all I needed to get to management where only self massage and wearing my sleeve and gauntlet were necessary.
At four years from diagnosis, I can often wear just the sleeve and go for a full day now and then without it if not doing anything requiring lifting anything heavier than clothing.
Lymphedema may be a vague annoyance at most with careful attention to what her "onc" and certified lymphedema massage therapist recommend for her condition.
It is very manageable with appropriate treatment.
that's all very good to know! she went into this super not wanting to get lymphedema FROM flying. she did not expect to get it before even getting in the air. but she's taking everything as it comes rather well, i'd say. i will pass this info along to her. she will be relieved to know that it won't be a major life issue!
I understand your worries, especially about your mom's stamina for the trip down, but if the plans seem like too much, just cut back. If you end up resting in the room for the rest of the day after arrival, it'll be nice for both of you to be together. It's nice to try for the higher level of plans, but just be casual about keeping to the schedule and feel free to let things go. I've traveled solo needing wheelchair assistance many times, and have only had an issue once, at Heathrow. Usually the airline staff is especially attentive when you're on your own, and with your mom's friendly personality they'll probably all be wanting to help her!
oh, i'm totally cool with letting things go! i think this whole trip will have the theme 'let it go'!
and thanks for the wheelchair at airports input! also, thank you for your most recent trip report! it was recommended to me by others, so i spent an afternoon reading it. you kind of rock, you know.
Quote:
Originally Posted by cubfancolleen
I totally understand your fears. I am always worried now when I travel with my DH, not the same issues as your mom, but still....
With regard to the lymphedema, just follow her med onc/surg onc's advice. It's not a long flight, so that's good.
With regard to her having grand plans, that may all be part of her need to think she's 'better'. I would guess that she'll figure out she can't do quite that much once she's there. I'd recommend not doing any 'I told you so' (although I don't think you would - you are Super Daughter). Maybe you could gently encourage a break - that you need some down time and want to enjoy your awesome room at BW & GF. Or look for cues and suggest sitting down to have a snack if she looks tired.
Love your list of what you're looking forward to!!! Enjoy all of it! As for the age of Soarin', that became more apparent to me when we did Flyin' Over Canada in Vancouver, the Canadian version. The screen was so much better, the picture was so much crisper. But you know what, it made me want to ride Soarin', as that is the version that is 'home' to me!
there's a flyn' over canada in vancouver??!! i had no idea. i love vancouver. more reason to go back.
and thanks for the perspective on why she maybe wants to do some things on her own. i will completely keep that in mind (particularly if/when i find out i can't get on standby!)
and i will never 'i told you so!'
Quote:
Originally Posted by Tara O'Hara
I can't think of anything to add that hasn't been said by others here. I totally agree that this will be a wonderful and at times scary trip for both of you. Just take it like it comes and you will both be fine! I love how excited your Mom is about this!!
I am so with you on the "adult children would prefer it if their mothers inconvenienced them". My mother is the same way!
i know, right?!?
Quote:
Originally Posted by Straitlover
Will she have her compression garment(s) by the time you leave? If not, I personally would not fly without them. You could either drive or take the train (regular or auto train). If you take the regular train, you could get Quicksilver to pick you up from the station or take a cab to your resort.
FYI - It took me a week to get my sleeves after measurement, and mine were off the shelf ones, not custom.
I hope you have a great trip. I've been wanting to plan one for myself (had my bilateral mastectomy July 2014 and implant exchange Dec 2014, luckily no chemo required), but it just hasn't worked out yet. My sis and I are doing our #$@% Cancer cruise in January though . She was diagnosed before me, right after we got back form our Sept 2013 cruise.
Will be praying and sending out for you both!!!
thank you for the prayers and the pixies. and yay for your sister cruise! january is right around the corner. i hope you have an amazing time. you both deserve it (2014 was a not great year, huh? that's how i feel about this year. for new years, i'm going to throw a 'good riddance, 2015!' party!)
and yes, i believe she already received her sleeve. i'm inquiring right now (like in a separate text window as i type this!)
Quote:
Originally Posted by Colexis Mom
Pixies for your Mom! My Dad has had lymphedema in his left arm since the late 80s after the removal of the lymph node under his arm and has flown many, many times (most to Disney twice a year)! I hope it all works out!
I totally get it. I'm worried about Chuck and his stamina for illness reasons as well. I think it's hard but we have to just let them decide their own energy levels and go with it. You're a good daughter - enjoy the positives!
(2014 was a not great year, huh? that's how i feel about this year. for new years, i'm going to throw a 'good riddance, 2015!' party!)
No it was not. I didn't mention that my mother passed away in November between my two surgeries because I didn't want to bum you out 2010 - 2014 was sucky to be honest (July 2010 my sis's DH died, Nov 2010 my mother diagnosed w/ Multiple Myeloma, Sept 2013 my sis diagnosed w/ BC, June 2014 I was diagnosed w/ BC, Nov 2014 my mother died).
2015 has been better but still not great. I'm ready for a GREAT year! I'm also ready to join you via computer on this trip!
I totally get it. I'm worried about Chuck and his stamina for illness reasons as well. I think it's hard but we have to just let them decide their own energy levels and go with it. You're a good daughter - enjoy the positives!
i *try* to be a good daughter. i do not always succeed.
Quote:
Originally Posted by Straitlover
No it was not. I didn't mention that my mother passed away in November between my two surgeries because I didn't want to bum you out 2010 - 2014 was sucky to be honest (July 2010 my sis's DH died, Nov 2010 my mother diagnosed w/ Multiple Myeloma, Sept 2013 my sis diagnosed w/ BC, June 2014 I was diagnosed w/ BC, Nov 2014 my mother died).
2015 has been better but still not great. I'm ready for a GREAT year! I'm also ready to join you via computer on this trip!
oh my! i thought my week was bad (nana passed away, mom diagnosed with cancer, i lost my job--those last two on the same day.) yikes! you are totally due for a great year. here's to 2016!
and yes, i will definitely be live sharing the trip. both here and on instagram, because i have an instagram addiction.
Signing on! Never been to the hula show, but if you can keep your eyes open long enough to go to the new Grogg Grotto afterwards, that would be AWESOME!!! Reviews I've read is that there is a very hefty wait to get seating, but after 11pm, it really opens up.
Signing on! Never been to the hula show, but if you can keep your eyes open long enough to go to the new Grogg Grotto afterwards, that would be AWESOME!!! Reviews I've read is that there is a very hefty wait to get seating, but after 11pm, it really opens up.
I have not heard of this grotto. But I will definitely check it out! We are staying at the GF that night, so it's not like there will be too much of a commute 'home'. Thanks for the tip!
I have not heard of this grotto. But I will definitely check it out! We are staying at the GF that night, so it's not like there will be too much of a commute 'home'. Thanks for the tip!
I think she might be talking about Trader Sam's at the Poly?
I think she might be talking about Trader Sam's at the Poly?
Yep. Already looked it up and forwarded the DFB post to mom. She said we can stop by. They have non alcoholic drinks (and sausage on a stick--she currently can only really enjoy sausage). So yay!
Tracy glad to hear that your mom is doing much better and feels well enough for another trip to the Bubble with her daughter. I am a bit disappointed we wont be regaled with any tales of her practicing for the high hurdles at the Penn Games this time but we will keep her in our prayers for future trips
Tracy glad to hear that your mom is doing much better and feels well enough for another trip to the Bubble with her daughter. I am a bit disappointed we wont be regaled with any tales of her practicing for the high hurdles at the Penn Games this time but we will keep her in our prayers for future trips
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. She was diagnosed before me, right after we got back form our Sept 2013 cruise.
2010 - 2014 was sucky to be honest (July 2010 my sis's DH died, Nov 2010 my mother diagnosed w/ Multiple Myeloma, Sept 2013 my sis diagnosed w/ BC, June 2014 I was diagnosed w/ BC, Nov 2014 my mother died).
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