Thanks to the PCRU, We Get to Go to DLR Too! **COMPLETE 8/21/2010** - Page 2 - PassPorter - A Community of Walt Disney World, Disneyland, Disney Cruise Line, and General Travel Forums
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There are other changes as well.
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We go on to the joy and through the tears
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Moving on with the current of the years.
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It's time to move on and move forward.
PassPorter is a small business, and for many years it supported our family. But the world changed, print books took a backseat to the Internet, and for a long time now it has been unable to make ends meet. We've had to find new ways to support our family, which means new careers and less and less time available to devote to our first baby, PassPorter.
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So we encourage you to stay in touch with us and your fellow community members wherever works best for you!
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I'm looking forward to reading this TR but have no idea on the PCRU.
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Originally Posted by sc507
Joining in thanks to your 'shameless plug' on your other TR Can't wait to read another of your TRs!
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Originally Posted by chezp
Great start!
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Originally Posted by BeckiO5
Great introductions Danielle. Sorry I am stumped, but excited to read about your family's DLR Adventures nonetheless.
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Originally Posted by Colexis Mom
Great start Danielle!
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Originally Posted by pamcarey
Great start! I love your TR's and it will be exciting to read your reviews of the DLR restaurants!
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Originally Posted by Desurae
Great start! Can't wait to hear all about your next trip!!!
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Originally Posted by Hugmonster
I'm jealous!! DLR!!
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Originally Posted by lazanya
Great start!
I am feeling the love! I was really leaning towards skipping the whole TR business but figure this is, I hope, going to be one of those oh-so-special trips.
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Originally Posted by OhToodles!
OK, so I googled PCRU even before you asked the question and since everyone else has said what I already think it is, I'll throw this out: Post Conflict Reconstruction Unit.
By the way, when I did google PCRU, this TR was #7.
Oy, Hopkins will love me....families will try to goggle info on the PCRU and up will pop the crazy adventures of our family!
danielle
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~Shoot for the moon, if you miss, you will land among the stars~
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Can anyone guess what the PCRU is? Anyone who gets it wins a souvenir from DLR! J
Up Next….
Trip deets!
Danielle
Since others beat me to the punch, will I get a star for mentioning I know the GCRC end of it as I dabbled in a bit of research nursing eons ago? <but for my ADD-clad self I didn't like not running around all the time so back to the floor I went!>
Can't wait to hear more details and possibly see some food porn, West-coast style!
Since others beat me to the punch, will I get a star for mentioning I know the GCRC end of it as I dabbled in a bit of research nursing eons ago? <but for my ADD-clad self I didn't like not running around all the time so back to the floor I went!>
Can't wait to hear more details and possibly see some food porn, West-coast style!
You get an honorable mention, Jooki!
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Originally Posted by kmurburg
Can't wait to live vicariously through your DLR trip since I won't be getting there any time soon! I'm looking forward to hearing all the fun stuff!
Thanks, Karen, we are really looking forward to it!
danielle
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~Shoot for the moon, if you miss, you will land among the stars~
So, I have to confess, at 3am, when I couldn’t sleep, I started ‘writing’ this TR in my head. And, ya know what? It sounded pretty darn good. Of course now, as I sit at the computer, it all just sounds like a jumbled up mess of gar-bage. (I suppose it sounded that way at 3am but I was too sleep deprived to notice….) Oh well, here goes nothing!
The back story is that Izzy has significant food allergies and WDW is our one safe haven. Not to complain because WDW is an awesome place to visit but it is sometimes hard when it feels like it is the ~only~ place we can visit. I have long been eyeing DLR as an option but knew, in my heart, Izzy was just not ready and her docs concurred. However, she has been making slow but steady progress and in the last two years, she was able to introduce eggs and peanuts into her diet. Sadly, her treenut allergy isn’t going anywhere and a food challenge earlier this year confirmed how significant it is. Now dairy, it is a whole other story. Izzy’s dairy allergy is more than bad with crazy reactivity. I have lost count but I believe she has been 911’d via ambulance six times, two of which when we were out of state, and one was actually at WDW on Christmas Day. We have long known Izzy will never outgrow her dairy allergy and it significantly impacts her ability to fully participate in school and many extra-curricular activities. We also have known that we had two options…..either wait out the research until an effective treatment/cure is found or become part of the research process in hopes of improving Izzy’s reactivity to something a bit more reasonable. It was a hard decision because we didn’t want to put Izzy in any danger or expose her to discomfort but at the same time, we knew that there were many parts of life that were passing her by. By the time Izzy was five, she wanted in on a study. She was too young but knew her day would come. Just after her sixth birthday, we got the go ahead and she became part of the dairy desensitization study at Johns Hopkins!
The study has been a really neat and a great experience thus far. I won’t bore you will the details but we are all grateful to be a part of something that will not only benefit our daughter but also the many, many people affected by food allergies.
Fast forward to today where Izzy continues on a daily dose on dairy (miniscule as it is) but is doing well enough to continue on and try to escalate her dosing. At one of her dairy challenges last month, I posed the question…”Can we go to Disneyland?” I almost fell outta my chair when we got the okay! I kid you not, within 24 hours, I had booked the hotel, tix, airfare, meals. Here is where it all fell out…
Grand California Hotel
Buy 3, Get 5 Nights
6 Day Park Hoppers
Fantasmic Dessert Party
World of Color Dining Package Ariel’s Grotto
Steakhouse 55
Napa Rose
Café Orleans
Club 33
And since we were doing it up on this trip….I went ahead and booked club level! J The kids don’t know so it will be a nice little surprise for them, I hope.
A visit to the PCRU….
Notice here it says PCRC...
High tech stuff, I tell ya!
Milk laced apple juice!
Yeah! Another escaltion dosing finished! Notice Izzy is holding 1 of her 2 fav pairs of flip flops...they are Nala originals!
So, it is truly Izzy’s many hours spent at the PCRU coupled with a team of healthcare providers who are so driven and dedicated to finding effective treatments…this is how and why we are heading to DLR!
Danielle
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~Shoot for the moon, if you miss, you will land among the stars~
Wow, talk about quick work Now that is a mom on a quest, get a "yes" and you got the trip booked in a day. I am so excited to have some of Danielle's famous food porn from the other coast.
How wonderful that Izzy is participating in research and progressing in her treatment! And Disneyland is quite a nice bonus! Looking forward to hearing more details.
Wow Danielle, so glad to hear Izzy has made great progress. Congrats Izzy! This sounds like it's going to be a fantastic trip. So sorry to hear about all of Izzy's ER Trips Danielle, especially one Christmas Day at WDW.
Sounds like a wonderful trip. I remember when you once asked for a Fairy God mailer for Izzy a few years ago and I happily provided one for her. It's been my pleasure to hear all about your family and your WDW adventures. Can't wait for the next installment, West Coast version!
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Can't wait to read another of your TRs!
I was really leaning towards skipping the whole TR business but figure this is, I hope, going to be one of those oh-so-special trips.
Like
Thank
Pixie Dust
Aimee
for a safe, happy and healthy trip.
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