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Old 05-09-2013, 06:22 PM   #1
DisneyDreamer05
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Question Trip with a G-Tube?

I'm just looking for some advice on traveling to Disney with a baby who has a G-Tube, he's 19 months will be turning 2 the day after we arrive.

I am assuming we will have to have his formula shipped since he is on a special formula because of severe allergies.

He is getting his G Tube in a couple weeks, currently 15lbs at 19 months. He will be on continuous feeds for the first little while but I am hoping by the time we go in Sept he won't be on continuous and will be finally eating some solids.

He doesn't walk yet. Once he gets a little bit bigger he will be getting braces and a gait trainer but we will be bringing our stroller and a carrier.

Anyway this is all new to us and only our 2nd time going to the world the first time our 2 older kids were not babies either so it's really all new. Any advice would be great.
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Old 05-10-2013, 12:22 AM   #2
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There is a baby care center in each park as well as a first aid center with nurses. I think there may be a fridge if you need it but someone else can verify. There are places for you to take care of all of your needs. The first aid station has private "rooms" with curtains and there is a quiet room with rockers in the baby care center.

I would recommend a GAC so that you can use a stroller as a wheelchair to keep from having to lift him out and carry him through every line. It will also allow him to keep his distance from others. This allows you to take your stroller in lines just like you would a wheelchair. Strollers are not usually allowed in lines and must be parked outside the attractions.

I hope someone else comes along soon that can be more helpful.

Have a magical trip.
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Old 05-12-2013, 10:23 AM   #3
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Didn't have a baby on a g-tube, but DD Samantha was for quite a while. We trucked her stuff down the first time we went, including an IV pole for the bag.
Here's a wonderful solution: you can take the formula on the plane with you, so you don't have to rely on shipping. You can pack a 'reasonable' amount in your carry on and the fluid restrictions do not apply. I'd pack enough for 24 hours.
Then - and this is key: pack the rest, plus all of his supplies and ONLY those medical items in a checked suitcase. As long as that suitcase has nothing but medical supplies (and a special formula is that), it can be checked as a medical supply bag and does not incur baggage fees. (yep, you pay nothing for that bag).
As someone else said, get a Stroller as Wheelchair pass - go to the Guest Services of any park and ask for one. You don't need a doctor's note, nor does Disney WANT one. They only need to see the child and have you say "He can't walk for medical reasons, we need a stroller as w/c pass." That's it, no other info is needed.
Good luck!
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Old 05-15-2013, 01:22 PM   #4
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Along with the First Aid stations and Baby Care Centers, there are Companion Restrooms, which are large enough to accommodate a stroller, wheelchair or ECV. They also give you a private place to toilet or change clothes without respect to gender. These were a lifesaver for me when traveling with my teen son who has autism, and also when helping my husband, who has mobility issues.
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Old 05-18-2013, 12:59 PM   #5
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Quote:
Originally Posted by mamaloya View Post
There is a baby care center in each park as well as a first aid center with nurses..

I would recommend a GAC so that you can use a stroller as a wheelchair

I hope someone else comes along soon that can be more helpful.
Your advice was great! Thanks so much!

I wanted to grand your wish for a little more help, so ...

Here is a link to locations and more information for baby-care-centers.

https://disneyworld.disney.go.com/gu...-care-centers/

Also, a technicality, "stroller as a wheelchair" is a tag that guest relations will provide. You won't need a GAC if that is your only need, since the tag and the wheels tell it all! Cast Members will know to redirect from stairs or other barriers without the GAC, so don't worry if Guest Services tells you the same thing.

Have you looked around the boards to see the ways you can adapt your child's wheels to make the visit nicer?
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Last edited by Sandra Bostwick; 05-18-2013 at 01:01 PM..
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Old 05-18-2013, 01:12 PM   #6
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Quote:
Originally Posted by DisneyDreamer05 View Post
I'm just looking for some advice on traveling to Disney with a baby who has a G-Tube, he's 19 months will be turning 2 the day after we arrive.

I am assuming we will have to have his formula shipped since he is on a special formula because of severe allergies.

He is getting his G Tube in a couple weeks, currently 15lbs at 19 months. He will be on continuous feeds for the first little while but I am hoping by the time we go in Sept he won't be on continuous and will be finally eating some solids.

He doesn't walk yet. Once he gets a little bit bigger he will be getting braces and a gait trainer but we will be bringing our stroller and a carrier.

Anyway this is all new to us and only our 2nd time going to the world the first time our 2 older kids were not babies either so it's really all new. Any advice would be great.
I remembered this after I finished the other post.

These are links to some articles I wrote a while back. You might find some tips on how to turn your stroller-as-a-wheelchair into a sensory haven for your baby. The Disney-specific information is VERY outdated. Updates on the Disney specific information will be available some time next month, so I'll post new links when that is out.

I*Managing: Case Examples on ADVANCE for Occupational Therapy Practitioners

I Managing on ADVANCE for Occupational Therapy Practitioners

I*Managing: Strategies and Resources on ADVANCE for Occupational Therapy Practitioners

I hope you have a wonderful trip!
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Old 05-20-2013, 04:59 PM   #7
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Originally Posted by Sandra Bostwick View Post
...Also, a technicality, "stroller as a wheelchair" is a tag that guest relations will provide. You won't need a GAC if that is your only need, since the tag and the wheels tell it all! Cast Members will know to redirect from stairs or other barriers without the GAC, so don't worry if Guest Services tells you the same thing....
Actually...you DO need both the hang-tag on the stroller and a GAC with the stroller-as-wheelchair stamp. Unlike regular wheelchairs/ECVs, they do require the GAC to use a stroller as wheelchair in lines despite having a hang-tag (I guess maybe to prevent anyone from stealing the tag?). While some CMs may allow entrance without showing the GAC, you could be turned away. They'll give you both at Guest Relations.

Enjoy your vacation!
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Old 05-20-2013, 05:05 PM   #8
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My DD has health issues, & we get both the GAC & Wheelchair tag for her stroller.
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Old 05-20-2013, 09:00 PM   #9
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We needed a GAC along with the stroller as wheelchair tag. A nice feature I learned (late in our trip) you won't necessarily need to fold the stroller up when boarding the buses if the wheelchair spaces are available. When we needed to, we were able to bring the stroller right in ride lines with us which helped tremendously because while my youngest can walk, he has developmental delays and at 35 pounds, was very heavy to hold when he would through a tantrum and refuse to walk further.

I also wanted to add that all restrooms have changing areas (even the mens') which was really nice because my husband was able to take our youngest for diaper changes.
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Old 05-22-2013, 11:18 PM   #10
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Thanks for the feedback. Was this recently that you needed both? I spoke to the manager of access for all the US Disney Parks, and he said a GAC was only needed for hidden needs. He said if wheels, a cane, or some other visible device would limits access is involved, there won't be a GAC. So, I looked back at my meeting notes, and I never asked specifically about needing a GAC with Stroller-as-wheelchair tags. The changes in the GAC requirements are pretty recent, BUT if anyone has gotten both in the past year-or-so, could you please post? I have a Disney e-book coming out soon, and I'd like to clarify that before the final is set if I misunderstood.
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