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Old 12-02-2006, 01:04 PM   #1
simbarel
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Pregnancy AFP Test

[img]/ubb/images/graemlins/zwavin.gif[/img] Evidently I elected for the screening for spina bifida and Down's syndrome. I'm scheduled to get my blood drawn on the 12th, but I'm starting to think twice about it. I wouldn't terminate no matter what the results, and I hear they come up with a lot of false positives, and I really don't need the stress.

What do you think? Did you or your loved ones have an AFP? I'm curious about your experiences because I'm leaning towards cancelling it. [img]/ubb/images/graemlins/thanx.gif[/img]
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Old 12-02-2006, 01:10 PM   #2
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Re: Pregnancy AFP Test

I chose not to do it. The peace of mind might be worth it, but I heard also about all the false positives and I just didn't even want to risk the possibility of THAT stress. I chose to believe that since I was healthy, had no genetic history of those and doing everything right during the pregnancy, the odds were overwhelmingly in favor of having a healthy baby, so I went with that.

Good luck with whatever you choose!
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Old 12-02-2006, 01:11 PM   #3
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Re: Pregnancy AFP Test

Even though I, like you, would never have terminated no matter the situation, I still elected to have it done. It wouldn't have mattered to me if Emilie had been born with a birth defect or Down's but I wanted to know just so that in case she were to have been, I could have studied up and learned the ins and outs and any special things we might have needed to know to care for her. Her test was negative, but my OB told me that in the event a test comes back positive they retest to double check that it wasn't a false positive.

ETA: If I wasn't as paranoid as I tend to be sometimes, I totally would have thought the way Melanie did. Seriously. [img]/ubb/images/graemlins/roflmao.gif[/img]
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Old 12-02-2006, 01:14 PM   #4
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Re: Pregnancy AFP Test

I elected not to do it either time [img]/ubb/images/graemlins/082502no_prv.gif[/img] As you, I wouldn't have terminated, and with the high risk of false positives (confirmed by my OB), what was the sense [img]/ubb/images/graemlins/082502no_prv.gif[/img] I didn't want to worry for nothing [img]/ubb/images/graemlins/082502no_prv.gif[/img]

My OBs were very supportive, and one had said his wife elected it, and came back with false positives every time (3 kids). No thanks [img]/ubb/images/graemlins/082502no_prv.gif[/img]
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Old 12-02-2006, 01:23 PM   #5
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Re: Pregnancy AFP Test

I had it all three times, but had very difficult pregnancies. I too wouldn't have terminated in any case, but I would much prefer to be prepared and research about any problems. No false positives either.
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Old 12-02-2006, 01:38 PM   #6
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Re: Pregnancy AFP Test

I didn't have it done and Justin came out fine. I mean he is a mean cranky butt teenager now but health wise he is fine.
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Old 12-02-2006, 02:07 PM   #7
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Re: Pregnancy AFP Test

[ QUOTE ]
I didn't have it done and Justin came out fine. I mean he is a mean cranky butt teenager now but health wise he is fine.

[/ QUOTE ]

Yeah, if they'd have had a Brat Test, I would have signed up for that. Then I would have been prepared. [img]/ubb/images/graemlins/laugh.gif[/img]
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Old 12-02-2006, 02:54 PM   #8
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Re: Pregnancy AFP Test

Nope didn't get it. Like everyone said it wouldn't matter either way [img]/ubb/images/graemlins/smile.gif[/img]
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Old 12-02-2006, 02:57 PM   #9
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Re: Pregnancy AFP Test

I refused with my forst DD but the second time around I took the test. They called me with the results and said it was "great", I had ONLY (???) a 20% chance of having a downs baby! That's great news? They said it was due to my age (over 30) but I was not thrilled with that answer.

If you are a "planner" and feel like you would want to know, you could have the test but with the # of false positives I would say why put yourself through the worry? You're going to love your baby no matter what!

Overall, it's a personal choice. Good luck!
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Old 12-02-2006, 03:34 PM   #10
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Re: Pregnancy AFP Test

I had one with my second child, oldest DD. I did have the false positive and like you told the doctor I didn't have any intentions of terminating the pregnancy. They had me see a specialist to discuss what the outcome could possibly be. DD was born perfectly normal and doesn't have any problems what-so-ever! I didn't have the test done with my last two children because I wasn't going through all that again!
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Old 12-02-2006, 03:37 PM   #11
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Re: Pregnancy AFP Test

I chose not to do it- for the same reasons you mentioned. It would not have changed anything. My OB kept pushing it saying that I was 'older than the average first time mother' and that I had a greater potential for birth defects. I have a happy, healthy almost 6 year old son who is my pride and joy!
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Old 12-02-2006, 03:38 PM   #12
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Re: Pregnancy AFP Test

I chose to have it done every time. With the last 2 kids, I would have terminated. (when you have one disabled child, the prospect of another is daunting)
If the results had been that I would have a diabled child, I would have insisted on more tests.
I do know people who have had the test, had it come back that there was something wrong - and it's true. The time between diagnosis and birth gave them the time to mourn a bit and come to an acceptance of a disabled child, instead of doing it after birth. It also allowed them the time to educate themselves about the disability, find experienced Drs., locate therapy services, and get support from other parents. That way, when their babies were born, each couple was able to welcome this child, and celebrate its birth, not mourn the loss of a dream.
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Old 12-02-2006, 04:04 PM   #13
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Re: Pregnancy AFP Test

Thanks for your input all. I think I will cancel it. My sil works in the NICU unit and she tells me that most of the Down's syndrome babies come from moms who are 40+ and I've been taking folic acid and chances of a spina bifida baby in the US are .0007. I'll have an ultrasound at 20 weeks, that should give us some indication on whether we need to prepare for something severe. My OB didn't push the test, his nurse offered it to me at the intake and I was like "yeah, sure" but I didn't realize they administer the test at a certain time in the pregnancy so you'd still have an "out." I was shocked when I learned that. Wish me luck!
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Old 12-02-2006, 04:22 PM   #14
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Re: Pregnancy AFP Test

[img]/ubb/images/graemlins/luck.gif[/img]
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Old 12-02-2006, 04:24 PM   #15
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Re: Pregnancy AFP Test

I didn't have it either and I'm glad. I would have stressed too much. BTW, oldest DD actually has a form of spina bifida that would have shown up on the test as a positive, only we didn't even know about it until she had a spine x-ray when she was 16 years old. It doesn't effect her in any way at all, but it's still there and I would have freaked out BIG time when I was PG with her.
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