As of January 1, 2019, we have closed our forums. This is a decision we did not come to lightly, but it is necessary. The software our forums run on is just too out-of-date and it poses a significant security risk. The server software itself must be updated, and it cannot be without removing the forums.
So it is with a heavy heart that we say goodbye to our long-running forums. They came online in 2000 and brought together so many wonderful Disney fans. We had friendships form, careers launch, couples marry, children born ... all because of this amazing community.
Thank you to each of you who were a part of this community. You made it possible.
And a very special thank you to our Guides (moderators), past and present, who kept our forums a happy place to be. You are the glue that held everything together, and we are forever grateful to you. Thank you aliceinwdw, Caldercup, MrsM, WillCAD, Fortissimo, GingerJ, HiddenMickey, CRCrazy, Eeyoresmom, disneyknut, disneydani, Cam22, chezp, WDWfan, Luvsun, KMB733, rescuesk, OhToodles!, Colexis Mom, lfredsbo, HiddenMickey, DrDolphin, DopeyGirl, duck addict, Disneybine, PixieMichele, Sandra Bostwick, Eeyore Tattoo, DyanKJ130, Suzy Q'Disney, LilMarcieMouse, AllisonG, Belle*, Chrissi, Brant, DawnDenise, Crystalloubear, Disneymom9092, FanOfMickey, Goofy4Goofy, GoofyMom, Home4us123, iamgrumpy, ilovedisney247, Jennifer2003, Jenny Pooh, KrisLuvsDisney, Ladyt, Laughaholic88, LauraBelle Hime, Lilianna, LizardCop, Loobyoxlip, lukeandbrooksmom, marisag, michnash, MickeyMAC, OffKilter_Lynn, PamelaK, Poor_Eeyore, ripkensnana, RobDVC, SHEANA1226, Shell of the South, snoozin, Statelady01, Tara O'Hara, tigger22, Tink and Co., Tinkerbelz, WDWJAMBA, wdwlovers, Wendyismyname, whoSEZ, WildforWD, and WvuGrrrl. You made the magic.
We want to personally thank Sara Varney, who coordinated our community for many years (among so many other things she did for us), and Cheryl Pendry, our Message Board Manager who helped train our Guides, and Ginger Jabour, who helped us with the PassPorter-specific forums and Live! Guides. Thank you for your time, energy, and enthusiasm. You made it all happen.
There are other changes as well.
Why? Well, the world has changed. And change with it, we must. The lyrics to "We Go On" for IllumiNations say it best:
We go on to the joy and through the tears
We go on to discover new frontiers
Moving on with the current of the years.
We go on
Moving forward now as one
Moving on with a spirit born to run
Ever on with each rising sun.
To a new day, we go on.
It's time to move on and move forward.
PassPorter is a small business, and for many years it supported our family. But the world changed, print books took a backseat to the Internet, and for a long time now it has been unable to make ends meet. We've had to find new ways to support our family, which means new careers and less and less time available to devote to our first baby, PassPorter.
But eventually, we must move on and move forward. It is the right thing to do.
So we are retiring this newsletter, as we simply cannot keep up with it. Many thanks to Mouse Fan Travel who supported it all these years, to All Ears and MousePlanet who helped us with news, to our many article contributors, and -- most importantly -- to Sara Varney who edited our newsletter so wonderfully for years and years.
And we are no longer charging for the Live Guides. If you have a subscription, it's yours to keep for the lifetime of the Live Guides at no additional cost. The Live Guides will stay online, barring server issues and technical problems, for all of 2019.
That said, PassPorter is not going away. Most of the resources will remain online for as long as we can support them, and after that we will find ways to make whatever we can available. PassPorter means a great deal to us, and to many of you, and we will do our best to keep it alive in whatever way we can. Our server costs are high, and they'll need to come out of our pockets, so in the future you can expect some changes so we can bring those costs down.
Thank you, thank you, thank you for your amazing support over the years. Without you, there's no way us little guys could have made something like this happen and given the "big guys" a run for their money. PassPorter was consistently the #3 guidebook after the Unofficial and Official guides, which was really unheard of for such a small company to do. We ROCKED it thanks to you and your support and love!
If you miss us, you can still find some of us online. Sara started a new blog at DisneyParkPrincess.com -- I strongly urge you to visit and get on her mailing list. She IS the Disney park princess and knows Disney backward and forward. And I am blogging as well at JenniferMaker.com, which is a little craft blog I started a couple of years ago to make ends meet. You can see and hear me in my craft show at https://www.youtube.com/c/jennifermaker . Many PassPorter readers and fans are on Facebook, in groups they formed like the PassPorter Trip Reports and PassPorter Crafting Challenge (if you join, just let them know you read about it in the newsletter). And some of our most devoted community members started a forum of their own at Pixie Dust Lane and all are invited over.
So we encourage you to stay in touch with us and your fellow community members wherever works best for you!
Welcome! We're happy you've found the PassPorter Community -- the friendliest place to plan your vacation to Walt Disney World, Disney Cruise Line, Disneyland, and the world in general! You are now viewing the PassPorter Message Board Community as a guest, which gives you limited access. As our guest, feel free to browse our messages by selecting the forum you want to visit from the list below.
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Figured that my experiences would help someone else.
I'm going to Disney once again. The last time we went there I was newly diagnosed with Polycystic Kidney Disease or PKD for short. Well, it was hell on earth. I decided that I was going to be "normal" no matter the cost.
Well, I learned after the first day what a mistake that was. My entire body hurt and I was very sure that I was going to end up in the hospital. Fortunately, I took a few extra hours to relax in the morning and my DH called one of the ECV rental companies and they brought one right over.
I had a few people look at me funny. Then, I overheard one person say that I must be too lazy to walk through the park. I didn't know what to say to them, so I said nothing. I went back to the hotel later that night and cried myself to sleep. I hadn't asked for this. Hadn't asked for a lifetime of pain.
The rest of that trip was sort of muted because nothing my DH did could lift my spirits.
That was almost 6 years ago. Now, my attitude has changed dramatically. I've learned that it doesn't matter what others say. It doesn't matter if they can "see" my disorder. I've learned that my health and well being are all that matter. I have a limited number of years left with my family and I'm determined to live them to the fullest.
So, for my trip in October, I'm renting an ECV from Randy's Mobility. I've already got my registration email printed out and everything. I've got the phone number programmed into my cell phone. Everything is set there.
No, you can't see my disease. I'm not asking for special treatment. I'm only asking that you don't judge me because I use a ECV so that I can enjoy my time in the park. I've also learned that most people probably aren't even paying attention to the fact that I'm in an ECV. They are simply enjoying time with their own families.
PKD sucks, but I've learned to live with it the best way that I can. One day at a time......
So, PKD is a relatively rare disease, but I'm wondering if there are any other members here that have it. If so, I would love to hear from you.
__________________
Me- Self proclaimed Disney nut. Love everything and anything to do with Disney.
DH- Not as obsessed as me, but still rather obsessed. Can talk like Goofy, but only does it to annoy his son
Chris 5 years old MNSSHP...2002
Registered Message Board Members save 30% off PassPorter guidebooks! When you register you'll have access to a discount coupon good for 30% off the list price of PassPorter books in our online store.
Being a person with a hidden disability I know exactly what you felt. I have learned over the years to just smile at "those people" that say snide remarks. As happy face & smile disarms them right away. I have also said something like "I sure wish I could be well enough to do everything you can do, Have a magical day"
I refuse to let people like that spoil my day.
Smile, Take it easy, Take breaks & enjoy your vacation..
As far as travelling at WDW on an ECV, my mom has COPD (basically, chronic bronchitis) and asthma. 7 years ago, she had 20% of her lungs removed due to a (non cancerous) growth, so to say she has trouble breathing at times is an understatement. After the surgery, we went to WDW and she missed out on so much because she spent all her time sitting on benches. She just couldn't breathe and she didn't want to go anymore.
We finally convinced her to try renting a scooter and now we can't keep up with her! She loves it! The problem with the looks from others when she's on her ECV is likely more geared toward her being overweight. (see the Catch-22 there? She can't lose weight cuz she can't breathe while exercising) At first, it bothered her because she could actually hear the rude people saying things like "she only needs that cuz she's fat." etc.... People are mean! In her heart she knows the real reason for the scooter and that's ultimately all that matters. You'll never see those people again, so does it really matter what they think?! Besides, she's at that age now where she doesn't care anymore! She's gonna do what she's gonna do and if you don't like it, don't look at it!! Love it.
Rent that scooter, race your family and friends, and have a good time. And who cares what others think. Have a great time!!!
__________________
Tanya
Every click helps feed .6 bowls of food to rescued animals. Give a quick click every day and help animals in shelters! www.theanimalrescuesite.com
Registered Message Board Members save 30% off PassPorter guidebooks! When you register you'll have access to a discount coupon good for 30% off the list price of PassPorter books in our online store.
My youngest daughter is somewhat visibly disabled. She has cerebral palsy, which causes her to have some unusual movements and she is not able to walk or talk, although she hears just fine.
Over the years, we have heard some comments of the 'I hate it when someone gets a wheelchair to skip lines' type. First of all, we don't skip lines since most are accessible.
And, second, anyone who doesn't notice that she is disabled is just not very observant ( I can think of worse terms, but not for a family board).
Her wheelchair has very specialized seating (gel seat cushion and specially shaped back), a special seatbelt with extra straps to compensate for her spasticity, plus her feet are strapped to the footrests. I'd someone doesn't notice those things, her stick thin legs and the fact that she is signing to talk to us should give them some clue that we didn't just go rent a wheelchair from 'Wheelchairs R Us'. (in fact, her manual wheelchair cost more than my first car, plus she has a power wheelchair too).
If people are so worried about other people that they can't see what is right in front of them, it's not my problem. It's theirs.
Last edited by SueM loves WDW; 02-15-2012 at 09:35 PM..
Reason: Lots of typos
I'm glad you're determined to no longer let rude, insensitive comments phase you!
We hear enough of those directed at DD Samantha's use of a wheelchair. Like SueM Loves WDW, my DD has a specialized wheelchair. Her power chair costs more than most luxury vehicles and yet we'll hear people commenting about "It must be nice to be able skip lines" Yeah, when the lines are able to be skipped, it is nice. I'm not going to lie. What I always tell people (and yes, I respond to all those rude comments) - "It sure is. After spending 6 months a year in hospital, usually on a ventilator, days and days in doctor's offices or in therapy rooms, and having so many IVs and injections and blood draws her veins have collapsed, it's a great way to get to spend 4 or 5 days of an otherwise dismal year. I'll pray for you tonight, that you never experience the pain of a disabled child or the difficulty of having to explain why she'll never dance or run or swim in the ocean. I hope you all have a great vacation. We are!" I still say stuff like this, even though DD is now 28, married, and hasn't lived at home for 5 years!
I had a few people look at me funny. Then, I overheard one person say that I must be too lazy to walk through the park. I didn't know what to say to them, so I said nothing. I went back to the hotel later that night and cried myself to sleep. I hadn't asked for this. Hadn't asked for a lifetime of pain.
The rest of that trip was sort of muted because nothing my DH did could lift my spirits.
That was almost 6 years ago. Now, my attitude has changed dramatically. I've learned that it doesn't matter what others say. It doesn't matter if they can "see" my disorder.
So, PKD is a relatively rare disease, but I'm wondering if there are any other members here that have it. If so, I would love to hear from you.
I can't stand people who judge others. I've seen so many people who don't "get" hidden needs at all. Do what you need to do to enjoy the parks! As far as I am concerned, ignorance is a hidden need!
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