Pixies Needed My daughter and My grandmother - PassPorter - A Community of Walt Disney World, Disneyland, Disney Cruise Line, and General Travel Forums
As of January 1, 2019, we have closed our forums. This is a decision we did not come to lightly, but it is necessary. The software our forums run on is just too out-of-date and it poses a significant security risk. The server software itself must be updated, and it cannot be without removing the forums.
So it is with a heavy heart that we say goodbye to our long-running forums. They came online in 2000 and brought together so many wonderful Disney fans. We had friendships form, careers launch, couples marry, children born ... all because of this amazing community.
Thank you to each of you who were a part of this community. You made it possible.
And a very special thank you to our Guides (moderators), past and present, who kept our forums a happy place to be. You are the glue that held everything together, and we are forever grateful to you. Thank you aliceinwdw, Caldercup, MrsM, WillCAD, Fortissimo, GingerJ, HiddenMickey, CRCrazy, Eeyoresmom, disneyknut, disneydani, Cam22, chezp, WDWfan, Luvsun, KMB733, rescuesk, OhToodles!, Colexis Mom, lfredsbo, HiddenMickey, DrDolphin, DopeyGirl, duck addict, Disneybine, PixieMichele, Sandra Bostwick, Eeyore Tattoo, DyanKJ130, Suzy Q'Disney, LilMarcieMouse, AllisonG, Belle*, Chrissi, Brant, DawnDenise, Crystalloubear, Disneymom9092, FanOfMickey, Goofy4Goofy, GoofyMom, Home4us123, iamgrumpy, ilovedisney247, Jennifer2003, Jenny Pooh, KrisLuvsDisney, Ladyt, Laughaholic88, LauraBelle Hime, Lilianna, LizardCop, Loobyoxlip, lukeandbrooksmom, marisag, michnash, MickeyMAC, OffKilter_Lynn, PamelaK, Poor_Eeyore, ripkensnana, RobDVC, SHEANA1226, Shell of the South, snoozin, Statelady01, Tara O'Hara, tigger22, Tink and Co., Tinkerbelz, WDWJAMBA, wdwlovers, Wendyismyname, whoSEZ, WildforWD, and WvuGrrrl. You made the magic.
We want to personally thank Sara Varney, who coordinated our community for many years (among so many other things she did for us), and Cheryl Pendry, our Message Board Manager who helped train our Guides, and Ginger Jabour, who helped us with the PassPorter-specific forums and Live! Guides. Thank you for your time, energy, and enthusiasm. You made it all happen.
There are other changes as well.
Why? Well, the world has changed. And change with it, we must. The lyrics to "We Go On" for IllumiNations say it best:
We go on to the joy and through the tears
We go on to discover new frontiers
Moving on with the current of the years.
We go on
Moving forward now as one
Moving on with a spirit born to run
Ever on with each rising sun.
To a new day, we go on.
It's time to move on and move forward.
PassPorter is a small business, and for many years it supported our family. But the world changed, print books took a backseat to the Internet, and for a long time now it has been unable to make ends meet. We've had to find new ways to support our family, which means new careers and less and less time available to devote to our first baby, PassPorter.
But eventually, we must move on and move forward. It is the right thing to do.
So we are retiring this newsletter, as we simply cannot keep up with it. Many thanks to Mouse Fan Travel who supported it all these years, to All Ears and MousePlanet who helped us with news, to our many article contributors, and -- most importantly -- to Sara Varney who edited our newsletter so wonderfully for years and years.
And we are no longer charging for the Live Guides. If you have a subscription, it's yours to keep for the lifetime of the Live Guides at no additional cost. The Live Guides will stay online, barring server issues and technical problems, for all of 2019.
That said, PassPorter is not going away. Most of the resources will remain online for as long as we can support them, and after that we will find ways to make whatever we can available. PassPorter means a great deal to us, and to many of you, and we will do our best to keep it alive in whatever way we can. Our server costs are high, and they'll need to come out of our pockets, so in the future you can expect some changes so we can bring those costs down.
Thank you, thank you, thank you for your amazing support over the years. Without you, there's no way us little guys could have made something like this happen and given the "big guys" a run for their money. PassPorter was consistently the #3 guidebook after the Unofficial and Official guides, which was really unheard of for such a small company to do. We ROCKED it thanks to you and your support and love!
If you miss us, you can still find some of us online. Sara started a new blog at DisneyParkPrincess.com -- I strongly urge you to visit and get on her mailing list. She IS the Disney park princess and knows Disney backward and forward. And I am blogging as well at JenniferMaker.com, which is a little craft blog I started a couple of years ago to make ends meet. You can see and hear me in my craft show at https://www.youtube.com/c/jennifermaker . Many PassPorter readers and fans are on Facebook, in groups they formed like the PassPorter Trip Reports and PassPorter Crafting Challenge (if you join, just let them know you read about it in the newsletter). And some of our most devoted community members started a forum of their own at Pixie Dust Lane and all are invited over.
So we encourage you to stay in touch with us and your fellow community members wherever works best for you!
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My Grandmother fell getting out of bed at the assisted living center she was living at clear back last November (what a way to celebrate turning 95). After her surgery and hospital recovery she was transferred to a nursing home for rehab. Once she could walk using her walker she was to be released back to the assisted living facility.
She is walking using the walker but the nursing home is refusing to release her because plain and simple they would be out the money that they are getting for her care once she is released.
She has an appointment with the Orthopedic DR who has been treating her hip on the 19th. My mom is going to be going to that appointment and finding out what exactly is going on because the DR is telling the family that she can go back to the assisted living facility and the nursing home is saying that the DR is saying that she can't.
Right now we can only visit her we can not take her for Sunday afternoon drives, take her to my uncle's house to spend late Sunday morning till early evening just visiting, or even pick her up to go to a birthday party for a great grand child. She will even have to miss the baby shower for the newest great grand child this weekend because they will not let the family take her out and transport her and they only transport for medical appointments.
She should have been released 6 weeks ago.
I also need pixies for my 2 yr old daughter. She is language delayed though now has a vocabulary of 10-15 words. Her speech therapist thinks that she has Apraxia but when we went to see the developmental ped she was diagnosed as having mild autism in spite of the fact that the lack of language is the only one of the criteria she meets and according to the DSM IV for a diagnosis of autism a child must have from caterogry I 6 items including 2 from A 1 from B and 1 from C and must also have 1 from catagory II.
The reason the dr decided to diagnose her is because of a new law that just took effect in my state that says that for a diagnosis of autism insurance companies must pay for speech therapy (the early intervention agency we are having to use-it's based on your address because I would be going to the one we had before we moved if I could- (I loved our old worker) is not happy about having to pay because our insurance does not and our worker keeps making comments about are you sure you can't pay more. No we can't and by law services are to be provided free of charge to families so technically we should not be paying anything for her therapy). Well my dh and I felt that this was insurance fraud (I have some people on other boards that disagree with me on this and think that as long as it gets my daughter the help she needs who cares. I care because 1 it is dishonest and 2 nothing is going to change on the assistance she gets except that the early intervention agency is not going to have to pay anymore) so we contacted our insurance agency.
We found out that technically because dh works for a large company that has offices all over the country (he wore his hat at Disney World and several cast members even recognized the company because a lot of the food at Disney World comes from the same company just a different location) that they don't have insurance but are self insurured through a private group medical trust fund and because of that they only have to follow federal mandates not state mandates (which this law is) and thus it doesn't apply.
When I called the Dr to give this information at first during our conversation it was well maybe it is apraxia but than I think we will keep the autism diagnosis so that she qualifies for the special ed preschool (we plan on homeschooling all the way through and don't see what advantage preschool would give her on her language skills over working one on one at home would and we can see several disadvantages which I won't get into at this time). If we were going to send her to the special ed preschool she would qualify just on being a child with a disability or on speech imparement which Apraxia also known as Childhood Apraxia of Speech is considered.
The dr wants her to go through a comprehensive evaluation that the dr sits on and that is sponsored by the early intervention agency both reasons I am not comfortable with this. We have a meeting tomorrow with the early intervention agency to get my questions asked and at this meeting I am going to be requesting that we be assigned a new worker immediately because the one we are dealing with now does not respect me as my child's mother and will not take no for my decisions on things if the worker feels that it should be done different among them we have said no in November, December, and February to this evaluation (January we were in Disney World having a blast and I promise a trip report as soon as I can) and the worker can't seem to get a clue that we are not interested. My daughter gets all agitated when this worker is around as evident a few weeks ago after a speech therapy session and the worker showed up-my normally well behaved for a 2 yr old (seriously you tell her go put that away or don't touch and she listens and tantrums last less than 20 seconds I just have to tell her enough crying isn't going to get you that cookie or what ever I already told you no and that's it) was acting up for the next 2 days. The worker is the only person my daughter walks to the door and she actually pushes the door shut as the worker is walking out. Personally I think she is saying through her actions go away I don't care if your mad and don't let the door hit you in the rear end on your way out. That is another reason that we are going to be requesting a new worker.
We have an appointment for a second opinion on the 25th of this month out of town and at this point I am not going to say where just that we will be traveling that day and leaving early in the morning so pixies needed for a good appointment and for travel as well.
Good luck Tammy. You're the parent and you should be able to decide about your child's treatment. People don't say no nearly enough. Keep up the good fight.
WDW Oct . 2012
Since Minnie's chair is gone, I had to find a new place to have our photo taken this past Oct. Not sure this will be the permanent place.
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