Pregnancy AFP Test - Page 3 - PassPorter - A Community of Walt Disney World, Disneyland, Disney Cruise Line, and General Travel Forums
PassPorter.com
Award-winning travel guidebooks

   guidebooks   |   news   |   podcasts   |   boards   |   blog   |   worksheets   |   photos   |   articles   |   updates   |   register   |   follow us on


Forums Closed
As of January 1, 2019, we have closed our forums. This is a decision we did not come to lightly, but it is necessary. The software our forums run on is just too out-of-date and it poses a significant security risk. The server software itself must be updated, and it cannot be without removing the forums.

So it is with a heavy heart that we say goodbye to our long-running forums. They came online in 2000 and brought together so many wonderful Disney fans. We had friendships form, careers launch, couples marry, children born ... all because of this amazing community.

Thank you to each of you who were a part of this community. You made it possible.

And a very special thank you to our Guides (moderators), past and present, who kept our forums a happy place to be. You are the glue that held everything together, and we are forever grateful to you. Thank you aliceinwdw, Caldercup, MrsM, WillCAD, Fortissimo, GingerJ, HiddenMickey, CRCrazy, Eeyoresmom, disneyknut, disneydani, Cam22, chezp, WDWfan, Luvsun, KMB733, rescuesk, OhToodles!, Colexis Mom, lfredsbo, HiddenMickey, DrDolphin, DopeyGirl, duck addict, Disneybine, PixieMichele, Sandra Bostwick, Eeyore Tattoo, DyanKJ130, Suzy Q'Disney, LilMarcieMouse, AllisonG, Belle*, Chrissi, Brant, DawnDenise, Crystalloubear, Disneymom9092, FanOfMickey, Goofy4Goofy, GoofyMom, Home4us123, iamgrumpy, ilovedisney247, Jennifer2003, Jenny Pooh, KrisLuvsDisney, Ladyt, Laughaholic88, LauraBelle Hime, Lilianna, LizardCop, Loobyoxlip, lukeandbrooksmom, marisag, michnash, MickeyMAC, OffKilter_Lynn, PamelaK, Poor_Eeyore, ripkensnana, RobDVC, SHEANA1226, Shell of the South, snoozin, Statelady01, Tara O'Hara, tigger22, Tink and Co., Tinkerbelz, WDWJAMBA, wdwlovers, Wendyismyname, whoSEZ, WildforWD, and WvuGrrrl. You made the magic.

We want to personally thank Sara Varney, who coordinated our community for many years (among so many other things she did for us), and Cheryl Pendry, our Message Board Manager who helped train our Guides, and Ginger Jabour, who helped us with the PassPorter-specific forums and Live! Guides. Thank you for your time, energy, and enthusiasm​. You made it all happen.

There are other changes as well.

Why? Well, the world has changed. And change with it, we must. The lyrics to "We Go On" for IllumiNations say it best:

We go on to the joy and through the tears
We go on to discover new frontiers
Moving on with the current of the years.
We go on
Moving forward now as one
Moving on with a spirit born to run
Ever on with each rising sun.
To a new day, we go on.

It's time to move on and move forward.

PassPorter is a small business, and for many years it supported our family. But the world changed, print books took a backseat to the Internet, and for a long time now it has been unable to make ends meet. We've had to find new ways to support our family, which means new careers and less and less time available to devote to our first baby, PassPorter.

But eventually, we must move on and move forward. It is the right thing to do.

So we are retiring this newsletter, as we simply cannot keep up with it. Many thanks to Mouse Fan Travel who supported it all these years, to All Ears and MousePlanet who helped us with news, to our many article contributors, and -- most importantly -- to Sara Varney who edited our newsletter so wonderfully for years and years.

And we are no longer charging for the Live Guides. If you have a subscription, it's yours to keep for the lifetime of the Live Guides at no additional cost. The Live Guides will stay online, barring server issues and technical problems, for all of 2019.

That said, PassPorter is not going away. Most of the resources will remain online for as long as we can support them, and after that we will find ways to make whatever we can available. PassPorter means a great deal to us, and to many of you, and we will do our best to keep it alive in whatever way we can. Our server costs are high, and they'll need to come out of our pockets, so in the future you can expect some changes so we can bring those costs down.

Thank you, thank you, thank you for your amazing support over the years. Without you, there's no way us little guys could have made something like this happen and given the "big guys" a run for their money. PassPorter was consistently the #3 guidebook after the Unofficial and Official guides, which was really unheard of for such a small company to do. We ROCKED it thanks to you and your support and love!

If you miss us, you can still find some of us online. Sara started a new blog at DisneyParkPrincess.com -- I strongly urge you to visit and get on her mailing list. She IS the Disney park princess and knows Disney backward and forward. And I am blogging as well at JenniferMaker.com, which is a little craft blog I started a couple of years ago to make ends meet. You can see and hear me in my craft show at https://www.youtube.com/c/jennifermaker . Many PassPorter readers and fans are on Facebook, in groups they formed like the PassPorter Trip Reports and PassPorter Crafting Challenge (if you join, just let them know you read about it in the newsletter). And some of our most devoted community members started a forum of their own at Pixie Dust Lane and all are invited over.

So we encourage you to stay in touch with us and your fellow community members wherever works best for you!

Best wishes for a wonderful and magical new year!

Go Back   PassPorter - A Community of Walt Disney World, Disneyland, Disney Cruise Line, and General Travel Forums > PassPorter Villa: Sharing the Fun Together > The Family Room: Family and Friends
Register


Welcome! We're happy you've found the PassPorter Community -- the friendliest place to plan your vacation to Walt Disney World, Disney Cruise Line, Disneyland, and the world in general! You are now viewing the PassPorter Message Board Community as a guest, which gives you limited access. As our guest, feel free to browse our messages by selecting the forum you want to visit from the list below.

To post messages and ask questions, join our FREE community today and you'll get access to tools and resources not available to guests, such as our vacation countown timers, "living" avatars, private messaging system, database searches, downloads, and a special PassPorter discount code. Registration is fast, simple, and completely free. Just click the Join Our Community link.

If you think you've already joined, log in below now. If you don't remember your member name or password, please visit our Member Name and Password Recovery page. You are also welcome to contact us.

Reply
 
Thread Tools Display Modes
Old 12-02-2006, 09:09 PM   #31
eff051102
Community Rank: Trailblazer
 
eff051102's Avatar
 
Join Date: Jan 2005
Location: Richardson, Texas
Concierge Level: 8
Posts: 5,653

Post Thanks / Like
Re: Pregnancy AFP Test

Rachel,

I'm choosing not to take the test also. At 35 (or I will be when the baby is born) and this being the first and only baby, I will take whatever miracle God gives me.

My Endo/Fert. dr. did talk to me about CF testing before we became pregnant and I worried so much about that test, that my DH refused to take the test so it was moot. I know he did that for me, and I will love him for that forever!

We've hit the 8 wk. mark and it's so exciting!
eff051102 is offline  
 
Reply With Quote
Old 12-02-2006, 10:08 PM   #32
Queen of Everything
Community Rank: Adventurer
 
Queen of Everything's Avatar
 
Join Date: Aug 2002
Location: Normal IL
Posts: 886

Post Thanks / Like
Re: Pregnancy AFP Test

I had a false positive (twice) for spina bifida. I ended up having an ameneocentecis so I would know 100%. My daughter does not have any birth defects. If I ever get pregnant again I will not have the test.

Amy
Queen of Everything is offline  
 
Reply With Quote
Old 12-02-2006, 10:56 PM   #33
JoanW
Community Rank: Navigator
 
JoanW's Avatar
 
Join Date: Sep 2003
Location: Davidsonville, MD
Posts: 6,563

Post Thanks / Like
Re: Pregnancy AFP Test

Hmmm. Sounds like a lot of false positives and a lot of pressure from the medical field to do it anyway. So me thinks someone is making a profit off of all these unnecessary tests!
JoanW is offline  
 
Reply With Quote
Old 12-03-2006, 12:05 AM   #34
simbarel
Community Rank: Explorer
 
Join Date: Feb 2003
Location: Longfellow's "Jewel by the Sea"
Posts: 14,165

Post Thanks / Like
Re: Pregnancy AFP Test

[ QUOTE ]
Hmmm. Sounds like a lot of false positives and a lot of pressure from the medical field to do it anyway. So me thinks someone is making a profit off of all these unnecessary tests!

[/ QUOTE ]

I didn't want to say it first, but I totally agree. This one test could snowball into other tests, etc. Especially when the chances of having this kind of problem isn't that great, it makes you wonder...

I think I'd be too afraid to take the brat test too...it might send DH packing! [img]/ubb/images/graemlins/grin.gif[/img]
simbarel is offline  
 
Reply With Quote
Old 12-03-2006, 08:44 AM   #35
vsonnier
Community Rank: Scout
 
vsonnier's Avatar
 
Join Date: Mar 2004
Location: Texas
Posts: 4,748

Post Thanks / Like
Re: Pregnancy AFP Test

I had the test, but don't plan on it for my next child. I wouldn't have terminated my pregnancy with Josh, but my stepmom convinced me that I should have it anyway so I could be prepared. She went on and on about how they need to have the right drs there if something is wrong, etc. Thankfully the test came back negative and Josh still ended up spending 2 weeks in the NICU. That showed me that if you are having a hospital birth, the right drs are able to be there in seconds regardless of whether you know you are having a problem or not. If you told me early in my pregnancy that Josh was going to have breathing problems and spend two weeks in the NICU I think I would have absolutely worried myself sick and I would not have had as healthy of a pregnancy as I did. It's just not worth it to me. Good luck with your decision!
vsonnier is offline  
 
Reply With Quote
Old 12-03-2006, 10:35 AM   #36
wdwlovers
Community Rank: Legend
 
wdwlovers's Avatar
 
Join Date: Mar 2000
Location: WI
Posts: 17,126

Post Thanks / Like
Re: Pregnancy AFP Test

I chose to have it with both my pregnancies. We chose to have it done to have peace of mind and to know if baby was okay. We had an abnormal result and with an u/s was shown that nothing was wrong. Of course, the only way to know 100% was to have an amnio, but we declined. I developed severe preeclampsia with Ariana at 34weeks and had to deliver. Thankfully all was okay.

With my second pregnancy I chose to have the screening again because there is a correlation between a false positive and placental complications later on in the pregnancy. I thought if I had an negative result this time, I could rest easier about my chances of PE again. Well, we ended up with showing a higher risk of spina bifada, same as with Ariana. U/S showed a great spine, so we felt good about that. I did end up with gestational hypertension with Phoenix, but avoided HELLP this time around. With this screening, I fully expected to have an abnormal result.

Yes this screening does have a higher false positive result. But it's a screening, not a definitive test to show the baby has something. Only further testing would indicate a condition. This is a decision to be made with you and your partner, and your physician. It's a personal choice. One thing that I've learned with my pregnancies and NICU experience is that I do my best not to worry until the doctors tell me I have something to worry about. I know that's easier said than done, especially with the first baby [img]/ubb/images/graemlins/grin.gif[/img].

Whatever you choose, know that you made the right choice for you.
wdwlovers is offline  
 
Reply With Quote
Old 12-03-2006, 11:02 AM   #37
disneymom9092
Faith, Trust, Pixie Dust
PassPorter's Club Passholder


What's this?

Community Rank:
Legend Extraordinaire
 
disneymom9092's Avatar
 
Join Date: Jul 2004
Location: Connecticut
Concierge Level: 6
Posts: 34,171

Post Thanks / Like
Re: Pregnancy AFP Test

I did with both boys and Matt's came back positive. Fortunately, I had an amniocentesis and he was just perfect! There are many false positives for sure, but after the amnio it was nice to relax. I never would have terminated either. However, I am such a planner and I needed to know, one way or the other, especially since I had another child.
disneymom9092 is offline  
 
Reply With Quote
Old 12-03-2006, 12:06 PM   #38
ncavy
Community Rank: Tourist
 
Join Date: Aug 2004
Posts: 21

Post Thanks / Like
Re: Pregnancy AFP Test

I am pregnant with my fifth and completely refused the test. My sister-in-law had a false positive and then had to do the amnio and it was a horrible experience. My doctor told me that the risk of amnios causing a miscarriage is higher than actually getting needed information from it. I would encourage you to cancel your test - there's already enough anxiety when you're pregnant about having a healthy baby let alone getting even a 20% chance of a problem existing. However your baby is forming and growing has already been established. I hope you find peace in whatever your decision is - I know it's a tough one.
ncavy is offline  
 
Reply With Quote
Old 12-03-2006, 03:09 PM   #39
mom2my4dwarfs
Community Rank: Globetrotter
 
mom2my4dwarfs's Avatar
 
Join Date: Jul 2002
Location: LITH, Illinois
Concierge Level: 1
Posts: 3,205

Post Thanks / Like
Re: Pregnancy AFP Test

I have declined that test with all 3 of my pregnancies. Good luck with your decision.
mom2my4dwarfs is offline  
 
Reply With Quote
Old 12-03-2006, 10:38 PM   #40
LorinMO
Community Rank: Trekker
 
LorinMO's Avatar
 
Join Date: Aug 2001
Posts: 1,268

Post Thanks / Like
Re: Pregnancy AFP Test

Rachel,

When I was pregnant with DS the AFP test was lumped in with all of the others so I had no clue until my OB called with the results and delivered the news that the test was positive and whatever the number was very high. I was sent to specialists and prepared for the worst. We opted to wait for our ultrasound at 16 weeks to see. DS was perfectly fine. After doing lots of research and talking to the specialist it was the defect in my spine that skewed the test results. I'm not sure what we would have done had there been something as horribly wrong as we were being prepared for. I'm just glad we didn't listen to anyone.

Good luck with whatever you decide.
LorinMO is offline  
 
Reply With Quote
Old 12-04-2006, 07:53 AM   #41
poohmaine
Community Rank: Trailblazer
 
poohmaine's Avatar
 
Join Date: Jan 2004
Location: Maine
Posts: 5,893

Post Thanks / Like
Re: Pregnancy AFP Test

If something is wrong, would you rather know now and prepare yourself? If so, take it. If not, don't.
poohmaine is offline  
 
Reply With Quote
Old 12-04-2006, 08:33 AM   #42
HiddenMickey
PassPorter's Club Passholder


What's this?

PassPorter Guide

Community Rank:
Legend Extraordinaire
 
HiddenMickey's Avatar
 
Join Date: Feb 2000
Location: Chapel Hill, NC USA
Concierge Level: 6
Posts: 36,592

Post Thanks / Like
Re: Pregnancy AFP Test

I opted not to take the test with both my kids.

They did keep asking me each visit, and I continued to remind them that I wasn't interested.
HiddenMickey is offline  
 
Reply With Quote
Old 12-04-2006, 09:19 PM   #43
Pamajama
Community Rank: Adventurer
 
Pamajama's Avatar
 
Join Date: Oct 2005
Location: Massachusetts/ near Boston
Posts: 738

Post Thanks / Like
Re: Pregnancy AFP Test

[ QUOTE ]
Even though I, like you, would never have terminated no matter the situation, I still elected to have it done. It wouldn't have mattered to me if Emilie had been born with a birth defect or Down's but I wanted to know just so that in case she were to have been, I could have studied up and learned the ins and outs and any special things we might have needed to know to care for her. Her test was negative, but my OB told me that in the event a test comes back positive they retest to double check that it wasn't a false positive.

ETA: If I wasn't as paranoid as I tend to be sometimes, I totally would have thought the way Melanie did. Seriously. [img]/ubb/images/graemlins/roflmao.gif[/img]

[/ QUOTE ]

[img]/ubb/images/graemlins/yeahthat.gif[/img]

I had the test for both pregnancy the first one was fine. The second one, not so much. It said I had a 1/24 chance of having a DS baby. The doctors did explaine the HUGE margin of error and false positves. I had a level 2 ultrasound and was told it was "good news"...it was now a 1/48 chance. uhg??? I went with the amnio to find out for sure. Everything was fine!!! I did it so I could prepare for the birth (just incase) and to put my mind at ease so I wouldn't worry about it anymore. I was glad I did. I was able to relax and enjoy the rest of my pregnancy. I also knew 100% that it was a girl [img]/ubb/images/graemlins/grin.gif[/img]

Good luck with your decision!!!
Pamajama is offline  
 
Reply With Quote
Reply



Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump














Please login or register to hide these ads -- it's free and easy!

All times are GMT -5. The time now is 12:47 PM.

-->

Powered by vBulletin® Version 3.8.9
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Feedback Buttons provided by Advanced Post Thanks / Like v3.4.0 Patch Level 1 (Pro) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
(c) 1998-2017 PassPorter Travel Press/MediaMarx, Inc.
Celebrating 19 Years of Making Dreams Come True
Ad Management plugin by RedTyger