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It's time to move on and move forward.

PassPorter is a small business, and for many years it supported our family. But the world changed, print books took a backseat to the Internet, and for a long time now it has been unable to make ends meet. We've had to find new ways to support our family, which means new careers and less and less time available to devote to our first baby, PassPorter.

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If you miss us, you can still find some of us online. Sara started a new blog at DisneyParkPrincess.com -- I strongly urge you to visit and get on her mailing list. She IS the Disney park princess and knows Disney backward and forward. And I am blogging as well at JenniferMaker.com, which is a little craft blog I started a couple of years ago to make ends meet. You can see and hear me in my craft show at https://www.youtube.com/c/jennifermaker . Many PassPorter readers and fans are on Facebook, in groups they formed like the PassPorter Trip Reports and PassPorter Crafting Challenge (if you join, just let them know you read about it in the newsletter). And some of our most devoted community members started a forum of their own at Pixie Dust Lane and all are invited over.

So we encourage you to stay in touch with us and your fellow community members wherever works best for you!

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Old 11-07-2015, 04:28 PM   #1
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Update on my Dad

It was 3 weeks ago yesterday that my 80 year old Dad had a major heart attack. Several days later while hospitalized, he had a mild stroke. He's still in the hospital. He had a lot of pulmonary issues at first, but his lungs are good now as well as his heart. He had to have a stomach tube inserted a week ago Friday and a trach was put in the following day. Still is on a respirator cause he's just so weak he can't do without it for long. Then his kidneys started acting up so now he's doing dialysis and to top it all off he now has C/diff which is a nasty intestinal infection which he will be on medication for a couple months. We were so hoping that after the stomach tube and trach that he would improve enough to be moved to an acute care facility where he would begin rehab, but it's looking like it's going to be a long road until he's well enough for that. I appreciate your prayers and pixie dust and hope that you will continue to think of him.
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Old 11-07-2015, 04:37 PM   #2
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Old 11-07-2015, 05:07 PM   #3
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Continued prayers for your Dad!
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Old 11-07-2015, 05:09 PM   #4
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Old 11-07-2015, 05:15 PM   #5
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Old 11-07-2015, 05:19 PM   #6
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Cindy,

Keep praying and hoping and supporting your dad. I spent almost three months in intensive care after my heart attack. Three years later my heart is functioning normally and I can do everything again.

Please do not rush your father. Things take time. And be very wary of long term acute care. It is not usually good care. I can tell you from personal experience. The LTAC facilities do not get the best staff, I felt my care was bordering on neglect at times. I was initially approved for 10 days for rehab. I was at the facility for 5-6 before I ever saw a PT or OT. I attribute my recovery to getting out of LTAC and home where I had the best in home nurses, PT and the loving care of my children.

Feel free to PM me.
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Old 11-08-2015, 10:56 AM   #7
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Please do not rush your father. Things take time. And be very wary of long term acute care. It is not usually good care. I can tell you from personal experience. The LTAC facilities do not get the best staff, I felt my care was bordering on neglect at times. I was initially approved for 10 days for rehab. I was at the facility for 5-6 before I ever saw a PT or OT. I attribute my recovery to getting out of LTAC and home where I had the best in home nurses, PT and the loving care of my children.

I'll second most of this. Except the comment on staff. Sometimes it is inferior staff. LTACs (at least in Indiana) will hire people who graduated from non-accredited nursing schools (meaning they aren't up to par with the regular schools), and there are a lot of people who work for LTACs who are just trying to get their feet in the door for nursing (including most techs (nurse's aides). Most techs I know are in nursing school and are jus trying to get through school. HOWEVER - LTACs notorious staff very low, leaving 1 RN, 1-2 LPNs, and 2 techs to care for 30-60 patients or more at a time. Everyone I ever knew who worked/works at an LTAC hate the restrictions this puts on them, hates the fact they KNOW their patients aren't receiving the best care, and HATE the fact that no-one in management seems to care. Most nurses leave as soon as they can find a better position because they really don't like their license being put in jeopardy.

C-Diff is a nasty infection. Are they treating your dad with antibiotics AND probiotics? If they're not using probiotics, insist on it. It helps restore intestinal health. Also - this is a Nosocomial Infection. Make sure your dad (and the insurance) aren't charged in any way for it. This is on the hospital, literally.

Look into good REHAB facilities, not LTACs. If your dad doesn't have a Case Manager, ask for one. Tell them you want a PT and OT evaluation to determine what he'll need to work on. They can also send an OT out to the house to determine what changes may need to be made to make it easier for your dad to get around (ramps, handrails, furniture moved, etc).

I'll continue hoping things go well for him. Give it time. One of my new co-workers (also a nurse), had a stroke while at work 7 years ago. This is her first job since then. She told me when she first had her stroke, she couldn't move any of her left side, couldn't speak, struggled to breathe, and had cognitive issues. She had OT, PT, and ST (speech therapy) for years, lessening from daily to weekly, and then monthly and now nothing. She has residual paralysis, but is able to walk and work (we don't see patients, we have desk jobs).
It's a long haul, but it does get better. Push, but not too hard.
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Old 11-07-2015, 07:13 PM   #8
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Old 11-07-2015, 09:20 PM   #9
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Continued [emoji14]ixies for your father, you & your family. After years of caring for two elderly & sickly individuals - please be diligent & watchover your father's care carefully especially after he is moved to a long term rehab facility. From experience, many things seem to slip through the cracks at these facilities. Be the squeaky wheel that gets your father the care he needs and deserves so he can get home to his family.
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Old 11-08-2015, 01:32 AM   #10
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Old 11-08-2015, 02:54 AM   #11
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Old 11-08-2015, 01:44 PM   #12
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Old 11-08-2015, 02:02 PM   #13
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Teresa,

I knew the LTAC I was going to had a mediocre (at best) reputation. ( a colleague's father had been there and she told me she and her mother did not feel comfortable leaving him). I asked not to go, however one of the medications I was on was not accepted at many LTAC's and rehabs. I had some major issues with the staff, many of whom did not seem to speak English. I seldom saw an RN and did not receive much care at all. In three weeks, I was never helped to bathe or shampoo. I went to MD appointments at the medical center by ambulance and the LTAC would not send a nurse with me so the EMTs stayed with me the whole time.(5-6 hours) And what really got to me was when I realized that the reason my IV was never attended during certain times was the staff was in the staff room eating a meal.

Perhaps my problem was that I was doing "well" compared with most of the other patients, many of whom were ventilated.

I think when you are ill and confined, good nursing care makes a world of difference. And little things, like washing your hair helps so much.And part of good care is having a staff that stays. My current hospital is considered one of the best, if not the best, in the world. The nursing staff is outstanding and most of them seem to have been there for at least 20 years. I have never been chastised for pushing the call button. In a 5 day hospitalization, I walked many, many more hours than I had in either my three month hospitalization or in the LTAC.

I think most nurses really want to do a good job and see comfortable patients. I would just do what I could to avoid a LTAC facility.

ETA: I have read many of my records during my extended hospitalization. I was shocked to see how I was noted to be pleasant and cooperative. I thought they were going to say, unpleasant, demanding and with a pushy family. I often wonder how the cranky patients were made to feel.
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Old 11-08-2015, 03:53 PM   #14
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