Pixies Needed My daughter and My grandmother About This Page:

[Sweetpeama]

Seriously in need of Pixies.

My Grandmother fell getting out of bed at the assisted living center she was living at clear back last November (what a way to celebrate turning 95). After her surgery and hospital recovery she was transferred to a nursing home for rehab. Once she could walk using her walker she was to be released back to the assisted living facility.

She is walking using the walker but the nursing home is refusing to release her because plain and simple they would be out the money that they are getting for her care once she is released.

She has an appointment with the Orthopedic DR who has been treating her hip on the 19th. My mom is going to be going to that appointment and finding out what exactly is going on because the DR is telling the family that she can go back to the assisted living facility and the nursing home is saying that the DR is saying that she can't.

Right now we can only visit her we can not take her for Sunday afternoon drives, take her to my uncle's house to spend late Sunday morning till early evening just visiting, or even pick her up to go to a birthday party for a great grand child. She will even have to miss the baby shower for the newest great grand child this weekend because they will not let the family take her out and transport her and they only transport for medical appointments.
She should have been released 6 weeks ago.

I also need pixies for my 2 yr old daughter. She is language delayed though now has a vocabulary of 10-15 words. Her speech therapist thinks that she has Apraxia but when we went to see the developmental ped she was diagnosed as having mild autism in spite of the fact that the lack of language is the only one of the criteria she meets and according to the DSM IV for a diagnosis of autism a child must have from caterogry I 6 items including 2 from A 1 from B and 1 from C and must also have 1 from catagory II.
The reason the dr decided to diagnose her is because of a new law that just took effect in my state that says that for a diagnosis of autism insurance companies must pay for speech therapy (the early intervention agency we are having to use-it's based on your address because I would be going to the one we had before we moved if I could- (I loved our old worker) is not happy about having to pay because our insurance does not and our worker keeps making comments about are you sure you can't pay more. No we can't and by law services are to be provided free of charge to families so technically we should not be paying anything for her therapy). Well my dh and I felt that this was insurance fraud (I have some people on other boards that disagree with me on this and think that as long as it gets my daughter the help she needs who cares. I care because 1 it is dishonest and 2 nothing is going to change on the assistance she gets except that the early intervention agency is not going to have to pay anymore) so we contacted our insurance agency.
We found out that technically because dh works for a large company that has offices all over the country (he wore his hat at Disney World and several cast members even recognized the company because a lot of the food at Disney World comes from the same company just a different location) that they don't have insurance but are self insurured through a private group medical trust fund and because of that they only have to follow federal mandates not state mandates (which this law is) and thus it doesn't apply.
When I called the Dr to give this information at first during our conversation it was well maybe it is apraxia but than I think we will keep the autism diagnosis so that she qualifies for the special ed preschool (we plan on homeschooling all the way through and don't see what advantage preschool would give her on her language skills over working one on one at home would and we can see several disadvantages which I won't get into at this time). If we were going to send her to the special ed preschool she would qualify just on being a child with a disability or on speech imparement which Apraxia also known as Childhood Apraxia of Speech is considered.
The dr wants her to go through a comprehensive evaluation that the dr sits on and that is sponsored by the early intervention agency both reasons I am not comfortable with this. We have a meeting tomorrow with the early intervention agency to get my questions asked and at this meeting I am going to be requesting that we be assigned a new worker immediately because the one we are dealing with now does not respect me as my child's mother and will not take no for my decisions on things if the worker feels that it should be done different among them we have said no in November, December, and February to this evaluation (January we were in Disney World having a blast and I promise a trip report as soon as I can) and the worker can't seem to get a clue that we are not interested. My daughter gets all agitated when this worker is around as evident a few weeks ago after a speech therapy session and the worker showed up-my normally well behaved for a 2 yr old (seriously you tell her go put that away or don't touch and she listens and tantrums last less than 20 seconds I just have to tell her enough crying isn't going to get you that cookie or what ever I already told you no and that's it) was acting up for the next 2 days. The worker is the only person my daughter walks to the door and she actually pushes the door shut as the worker is walking out. Personally I think she is saying through her actions go away I don't care if your mad and don't let the door hit you in the rear end on your way out. That is another reason that we are going to be requesting a new worker.
We have an appointment for a second opinion on the 25th of this month out of town and at this point I am not going to say where just that we will be traveling that day and leaving early in the morning so pixies needed for a good appointment and for travel as well.

Tammy

[Colexis Mom]

[omd]

[home4us123]

[saremca]

[GATechGal]

Good luck Tammy. You're the parent and you should be able to decide about your child's treatment. People don't say no nearly enough. Keep up the good fight.

[dluvsdisney]

[jimmymac]

[jodileigh]

[piglet925]

[kdevoe]

[lukeandbrookesmom]

[Luvsun]

[fairestofthemall]

Danielle

[Christine43]