Forums Closed
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As of January 1, 2019, we have closed our forums. This is a decision we did not come to lightly, but it is necessary. The software our forums run on is just too out-of-date and it poses a significant security risk. The server software itself must be updated, and it cannot be without removing the forums.
So it is with a heavy heart that we say goodbye to our long-running forums. They came online in 2000 and brought together so many wonderful Disney fans. We had friendships form, careers launch, couples marry, children born ... all because of this amazing community.
Thank you to each of you who were a part of this community. You made it possible.
And a very special thank you to our Guides (moderators), past and present, who kept our forums a happy place to be. You are the glue that held everything together, and we are forever grateful to you. Thank you aliceinwdw, Caldercup, MrsM, WillCAD, Fortissimo, GingerJ, HiddenMickey, CRCrazy, Eeyoresmom, disneyknut, disneydani, Cam22, chezp, WDWfan, Luvsun, KMB733, rescuesk, OhToodles!, Colexis Mom, lfredsbo, HiddenMickey, DrDolphin, DopeyGirl, duck addict, Disneybine, PixieMichele, Sandra Bostwick, Eeyore Tattoo, DyanKJ130, Suzy Q'Disney, LilMarcieMouse, AllisonG, Belle*, Chrissi, Brant, DawnDenise, Crystalloubear, Disneymom9092, FanOfMickey, Goofy4Goofy, GoofyMom, Home4us123, iamgrumpy, ilovedisney247, Jennifer2003, Jenny Pooh, KrisLuvsDisney, Ladyt, Laughaholic88, LauraBelle Hime, Lilianna, LizardCop, Loobyoxlip, lukeandbrooksmom, marisag, michnash, MickeyMAC, OffKilter_Lynn, PamelaK, Poor_Eeyore, ripkensnana, RobDVC, SHEANA1226, Shell of the South, snoozin, Statelady01, Tara O'Hara, tigger22, Tink and Co., Tinkerbelz, WDWJAMBA, wdwlovers, Wendyismyname, whoSEZ, WildforWD, and WvuGrrrl. You made the magic.
We want to personally thank Sara Varney, who coordinated our community for many years (among so many other things she did for us), and Cheryl Pendry, our Message Board Manager who helped train our Guides, and Ginger Jabour, who helped us with the PassPorter-specific forums and Live! Guides. Thank you for your time, energy, and enthusiasm. You made it all happen.
There are other changes as well.
Why? Well, the world has changed. And change with it, we must. The lyrics to "We Go On" for IllumiNations say it best:
We go on to the joy and through the tears
We go on to discover new frontiers
Moving on with the current of the years.
We go on
Moving forward now as one
Moving on with a spirit born to run
Ever on with each rising sun.
To a new day, we go on.
It's time to move on and move forward.
PassPorter is a small business, and for many years it supported our family. But the world changed, print books took a backseat to the Internet, and for a long time now it has been unable to make ends meet. We've had to find new ways to support our family, which means new careers and less and less time available to devote to our first baby, PassPorter.
But eventually, we must move on and move forward. It is the right thing to do.
So we are retiring this newsletter, as we simply cannot keep up with it. Many thanks to Mouse Fan Travel who supported it all these years, to All Ears and MousePlanet who helped us with news, to our many article contributors, and -- most importantly -- to Sara Varney who edited our newsletter so wonderfully for years and years.
And we are no longer charging for the Live Guides. If you have a subscription, it's yours to keep for the lifetime of the Live Guides at no additional cost. The Live Guides will stay online, barring server issues and technical problems, for all of 2019.
That said, PassPorter is not going away. Most of the resources will remain online for as long as we can support them, and after that we will find ways to make whatever we can available. PassPorter means a great deal to us, and to many of you, and we will do our best to keep it alive in whatever way we can. Our server costs are high, and they'll need to come out of our pockets, so in the future you can expect some changes so we can bring those costs down.
Thank you, thank you, thank you for your amazing support over the years. Without you, there's no way us little guys could have made something like this happen and given the "big guys" a run for their money. PassPorter was consistently the #3 guidebook after the Unofficial and Official guides, which was really unheard of for such a small company to do. We ROCKED it thanks to you and your support and love!
If you miss us, you can still find some of us online. Sara started a new blog at DisneyParkPrincess.com -- I strongly urge you to visit and get on her mailing list. She IS the Disney park princess and knows Disney backward and forward. And I am blogging as well at JenniferMaker.com, which is a little craft blog I started a couple of years ago to make ends meet. You can see and hear me in my craft show at https://www.youtube.com/c/jennifermaker . Many PassPorter readers and fans are on Facebook, in groups they formed like the PassPorter Trip Reports and PassPorter Crafting Challenge (if you join, just let them know you read about it in the newsletter). And some of our most devoted community members started a forum of their own at Pixie Dust Lane and all are invited over.
So we encourage you to stay in touch with us and your fellow community members wherever works best for you!
Best wishes for a wonderful and magical new year!
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12-02-2006, 01:04 PM
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#1
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Community Rank: Explorer 
Join Date: Feb 2003
Location: Longfellow's "Jewel by the Sea"
Posts: 14,165
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Pregnancy AFP Test
[img]/ubb/images/graemlins/zwavin.gif[/img] Evidently I elected for the screening for spina bifida and Down's syndrome. I'm scheduled to get my blood drawn on the 12th, but I'm starting to think twice about it. I wouldn't terminate no matter what the results, and I hear they come up with a lot of false positives, and I really don't need the stress.
What do you think? Did you or your loved ones have an AFP? I'm curious about your experiences because I'm leaning towards cancelling it. [img]/ubb/images/graemlins/thanx.gif[/img]
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12-02-2006, 01:10 PM
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#2
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Community Rank: Trailblazer 
Join Date: Jun 2002
Location: Houston
Posts: 5,162
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Re: Pregnancy AFP Test
I chose not to do it. The peace of mind might be worth it, but I heard also about all the false positives and I just didn't even want to risk the possibility of THAT stress. I chose to believe that since I was healthy, had no genetic history of those and doing everything right during the pregnancy, the odds were overwhelmingly in favor of having a healthy baby, so I went with that.
Good luck with whatever you choose!
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12-02-2006, 01:11 PM
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#3
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Dopey's biggest fan!
Join Date: May 2004
Location: China Spring, TX
Concierge Level: 9
Posts: 26,975
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Re: Pregnancy AFP Test
Even though I, like you, would never have terminated no matter the situation, I still elected to have it done. It wouldn't have mattered to me if Emilie had been born with a birth defect or Down's but I wanted to know just so that in case she were to have been, I could have studied up and learned the ins and outs and any special things we might have needed to know to care for her. Her test was negative, but my OB told me that in the event a test comes back positive they retest to double check that it wasn't a false positive.
ETA: If I wasn't as paranoid as I tend to be sometimes, I totally would have thought the way Melanie did. Seriously. [img]/ubb/images/graemlins/roflmao.gif[/img]
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12-02-2006, 01:14 PM
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#4
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RED SOX NATION!!
Join Date: Aug 2002
Location: Connecticut
Concierge Level: 9
Posts: 136,854
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Re: Pregnancy AFP Test
I elected not to do it either time [img]/ubb/images/graemlins/082502no_prv.gif[/img] As you, I wouldn't have terminated, and with the high risk of false positives (confirmed by my OB), what was the sense [img]/ubb/images/graemlins/082502no_prv.gif[/img] I didn't want to worry for nothing [img]/ubb/images/graemlins/082502no_prv.gif[/img]
My OBs were very supportive, and one had said his wife elected it, and came back with false positives every time (3 kids). No thanks [img]/ubb/images/graemlins/082502no_prv.gif[/img]
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12-02-2006, 01:23 PM
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#5
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Join Date: Jun 2004
Location: Northern NV
Concierge Level: 6
Posts: 12,516
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Re: Pregnancy AFP Test
I had it all three times, but had very difficult pregnancies. I too wouldn't have terminated in any case, but I would much prefer to be prepared and research about any problems. No false positives either.
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12-02-2006, 01:38 PM
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#6
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Community Rank: Explorer
Join Date: Jun 2006
Location: Cypress....Deep in Southern Illinois, close enough to see the Kentucky blue grass
Posts: 9,546
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Re: Pregnancy AFP Test
I didn't have it done and Justin came out fine. I mean he is a mean cranky butt teenager now but health wise he is fine.
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12-02-2006, 02:07 PM
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#7
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Community Rank: Trailblazer
Join Date: Jun 2002
Location: Houston
Posts: 5,162
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Re: Pregnancy AFP Test
[ QUOTE ]
I didn't have it done and Justin came out fine. I mean he is a mean cranky butt teenager now but health wise he is fine.
[/ QUOTE ]
Yeah, if they'd have had a Brat Test, I would have signed up for that. Then I would have been prepared. [img]/ubb/images/graemlins/laugh.gif[/img]
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12-04-2006, 09:19 PM
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#8
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Community Rank: Adventurer 
Join Date: Oct 2005
Location: Massachusetts/ near Boston
Posts: 738
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Re: Pregnancy AFP Test
[ QUOTE ]
Even though I, like you, would never have terminated no matter the situation, I still elected to have it done. It wouldn't have mattered to me if Emilie had been born with a birth defect or Down's but I wanted to know just so that in case she were to have been, I could have studied up and learned the ins and outs and any special things we might have needed to know to care for her. Her test was negative, but my OB told me that in the event a test comes back positive they retest to double check that it wasn't a false positive.
ETA: If I wasn't as paranoid as I tend to be sometimes, I totally would have thought the way Melanie did. Seriously. [img]/ubb/images/graemlins/roflmao.gif[/img]
[/ QUOTE ]
[img]/ubb/images/graemlins/yeahthat.gif[/img]
I had the test for both pregnancy the first one was fine. The second one, not so much. It said I had a 1/24 chance of having a DS baby. The doctors did explaine the HUGE margin of error and false positves. I had a level 2 ultrasound and was told it was "good news"...it was now a 1/48 chance. uhg??? I went with the amnio to find out for sure. Everything was fine!!! I did it so I could prepare for the birth (just incase) and to put my mind at ease so I wouldn't worry about it anymore. I was glad I did. I was able to relax and enjoy the rest of my pregnancy. I also knew 100% that it was a girl [img]/ubb/images/graemlins/grin.gif[/img]
Good luck with your decision!!!
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12-02-2006, 07:08 PM
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#9
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Community Rank: Explorer
Join Date: Jun 2004
Location: the Burbs outside of Philadelphia
Concierge Level: 1
Posts: 12,093
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Re: Pregnancy AFP Test
Rachel - If they do the test and they are even a day or two off you will most likely come up with a false positive. My test was positive for spina bifida so then I had to go have an ultra sound done so they could take a look at my childs spine. The figured out that they were off on my due date by 3 days and my dd was born perfectly healthy. I, though, was totally freaked out when I got the test results and was worried to death about my child having spina bifida. If I were to do it again I would not have the test done. By the way my child who supposedly had spina bifida scored 4 goals today in 2 ice hockey games. Spine is working just fine. [img]/ubb/images/graemlins/grin.gif[/img]
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*
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12-02-2006, 10:08 PM
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#10
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Community Rank: Adventurer
Join Date: Aug 2002
Location: Normal IL
Posts: 886
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Re: Pregnancy AFP Test
I had a false positive (twice) for spina bifida. I ended up having an ameneocentecis so I would know 100%. My daughter does not have any birth defects. If I ever get pregnant again I will not have the test.
Amy
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12-02-2006, 10:56 PM
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#11
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Community Rank: Navigator 
Join Date: Sep 2003
Location: Davidsonville, MD
Posts: 6,563
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Re: Pregnancy AFP Test
Hmmm. Sounds like a lot of false positives and a lot of pressure from the medical field to do it anyway. So me thinks someone is making a profit off of all these unnecessary tests!
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12-03-2006, 12:05 AM
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#12
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Community Rank: Explorer
Join Date: Feb 2003
Location: Longfellow's "Jewel by the Sea"
Posts: 14,165
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Re: Pregnancy AFP Test
[ QUOTE ]
Hmmm. Sounds like a lot of false positives and a lot of pressure from the medical field to do it anyway. So me thinks someone is making a profit off of all these unnecessary tests!
[/ QUOTE ]
I didn't want to say it first, but I totally agree. This one test could snowball into other tests, etc. Especially when the chances of having this kind of problem isn't that great, it makes you wonder...
I think I'd be too afraid to take the brat test too...it might send DH packing! [img]/ubb/images/graemlins/grin.gif[/img]
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12-03-2006, 10:35 AM
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#13
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Community Rank: Legend 
Join Date: Mar 2000
Location: WI
Posts: 17,126
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Re: Pregnancy AFP Test
I chose to have it with both my pregnancies. We chose to have it done to have peace of mind and to know if baby was okay. We had an abnormal result and with an u/s was shown that nothing was wrong. Of course, the only way to know 100% was to have an amnio, but we declined. I developed severe preeclampsia with Ariana at 34weeks and had to deliver. Thankfully all was okay.
With my second pregnancy I chose to have the screening again because there is a correlation between a false positive and placental complications later on in the pregnancy. I thought if I had an negative result this time, I could rest easier about my chances of PE again. Well, we ended up with showing a higher risk of spina bifada, same as with Ariana. U/S showed a great spine, so we felt good about that. I did end up with gestational hypertension with Phoenix, but avoided HELLP this time around. With this screening, I fully expected to have an abnormal result.
Yes this screening does have a higher false positive result. But it's a screening, not a definitive test to show the baby has something. Only further testing would indicate a condition. This is a decision to be made with you and your partner, and your physician. It's a personal choice. One thing that I've learned with my pregnancies and NICU experience is that I do my best not to worry until the doctors tell me I have something to worry about. I know that's easier said than done, especially with the first baby [img]/ubb/images/graemlins/grin.gif[/img].
Whatever you choose, know that you made the right choice for you.
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12-03-2006, 11:02 AM
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#14
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Faith, Trust, Pixie Dust
Join Date: Jul 2004
Location: Connecticut
Concierge Level: 6
Posts: 34,171
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Re: Pregnancy AFP Test
I did with both boys and Matt's came back positive. Fortunately, I had an amniocentesis and he was just perfect! There are many false positives for sure, but after the amnio it was nice to relax. I never would have terminated either. However, I am such a planner and I needed to know, one way or the other, especially since I had another child.
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12-03-2006, 03:09 PM
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#15
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Community Rank: Globetrotter 
Join Date: Jul 2002
Location: LITH, Illinois
Concierge Level: 1
Posts: 3,205
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Re: Pregnancy AFP Test
I have declined that test with all 3 of my pregnancies. Good luck with your decision.
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