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Old 02-26-2013, 07:04 AM   #1
QuiltsbyNini
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Larger Stroller needed for SN child

Here is my problem. We have to have a stroller in order to do Disney with my 11 year old special needs son (multiple emotional and physical problems). In the past, we have always rented a Liberty Special Needs Stroller form Orlando Stroller.

This year, he has met the maximum weight. The only wheelchairs for his weight, will not work for him. They are way too big and don't have the features needed for him.

Disney is the only time we ever use one for him, because at home we just don't go places for long periods of time that would require the mobility (and other issues) that Disney does.

Does anyone know where we can rent a small wheelchair or larger stroller type item for Disney? The Liberty was perfect, since it allowed for undisturbed naps and a place to hide during meltdowns. An open wheelchair will not help a lot, especially if it is too large.

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Old 02-26-2013, 07:30 AM   #2
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Originally Posted by QuiltsbyNini View Post
Here is my problem. We have to have a stroller in order to do Disney with my 11 year old special needs son (multiple emotional and physical problems). In the past, we have always rented a Liberty Special Needs Stroller form Orlando Stroller.

This year, he has met the maximum weight. The only wheelchairs for his weight, will not work for him. They are way too big and don't have the features needed for him.

Disney is the only time we ever use one for him, because at home we just don't go places for long periods of time that would require the mobility (and other issues) that Disney does.

Does anyone know where we can rent a small wheelchair or larger stroller type item for Disney? The Liberty was perfect, since it allowed for undisturbed naps and a place to hide during meltdowns. An open wheelchair will not help a lot, especially if it is too large.

Nini
Hi Nini,

Thanks so much for your question.

Lucky you! Planning another trip to Disney! My first question is about what has already worked. You mentioned that your son has met the maximum weight. Is he over? I'd first see if he has one more visit with the stroller that you like, as long as it isn't a safety issue with a possibility of breaking or tipping.Are we talking a few pounds?

It sounds like the next size ride, which is the wheelchair, has you worried? Maybe the company has small wheel chairs?
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Old 02-26-2013, 07:47 AM   #3
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The weight limit is 100, and he is now at 115, new meds causing significant weight gain! Unfortunately, the doctors say his weight will probably grow to the 130 range by the time we go in November.

The Liberty gave him a place to hide with the cover pulled down. He is emotionally a 3 yer old. He doesn't like people looking at him and lights bother him. His meds cause him to take a long nap each day, so he would pull the cover down and sleep.
From what I have seen, the wheelchairs that have a sun shade does not allow for complete coverage.

The wheelchairs we have found for his weight...the seats are really wide and look uncomfortable. Basically a sling seat with no padding. Because of his sensory issues he would last about 2 minutes in it.

We went to a local medical supply rental company so he could 'try' out a wheelchair and he did not like it...he even is saying he doesn't want to go to Disney if he has to ride in one of those things.
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Old 03-07-2013, 01:08 AM   #4
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The weight limit is 100, and he is now at 115, new meds causing significant weight gain! Unfortunately, the doctors say his weight will probably grow to the 130 range by the time we go in November.

The Liberty gave him a place to hide with the cover pulled down. He is emotionally a 3 yer old. He doesn't like people looking at him and lights bother him. His meds cause him to take a long nap each day, so he would pull the cover down and sleep.
From what I have seen, the wheelchairs that have a sun shade does not allow for complete coverage.

The wheelchairs we have found for his weight...the seats are really wide and look uncomfortable. Basically a sling seat with no padding. Because of his sensory issues he would last about 2 minutes in it.

We went to a local medical supply rental company so he could 'try' out a wheelchair and he did not like it...he even is saying he doesn't want to go to Disney if he has to ride in one of those things.
Hmmm. This sounds complicated. It sounds like his body has outgrown The Liberty. The restrictions on height or weight are for the safety of the rider, so it is in his best interests to follow those guidelines.

I wonder if a cushion might help with the wheelchair. What do you think you'll do?
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Old 03-07-2013, 10:48 AM   #5
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Have you looked into the Convaid strollers/chairs? I know they have many different models and there might be one that could work for your son's needs. Some fold nicely like an umbrella stroller, others are larger and heavier but offer recline and such (I think a canopy but I"m not certain). I'm not sure if anywhere in Orlando rents them or not, but you might find a used one to buy if you want to make the investment - around here they are often listed on the state's AT Re-use website and there are other websites that list used special needs equipment. I was looking at Convaids but we settled on a Maclaren Major for DD, but she simply needs a "ride" when too tired and not as much of a retreat.

Insurance MAY cover part of the cost, but if you don't need it at home you'd have to get a therapist or doctor to write a creative reason for medical necessity. However, if you plan to make future WDW trips, it could pay for itself over time.

Good luck and enjoy your vacation!
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Old 03-08-2013, 08:38 PM   #6
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Have you looked into the Convaid strollers/chairs? I know they have many different models and there might be one that could work for your son's needs. Some fold nicely like an umbrella stroller, others are larger and heavier but offer recline and such (I think a canopy but I"m not certain). I'm not sure if anywhere in Orlando rents them or not, but you might find a used one to buy if you want to make the investment - around here they are often listed on the state's AT Re-use website and there are other websites that list used special needs equipment. I was looking at Convaids but we settled on a Maclaren Major for DD, but she simply needs a "ride" when too tired and not as much of a retreat.

Insurance MAY cover part of the cost, but if you don't need it at home you'd have to get a therapist or doctor to write a creative reason for medical necessity. However, if you plan to make future WDW trips, it could pay for itself over time.

Good luck and enjoy your vacation!
GREAT advice! Thanks!
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Old 03-07-2013, 09:19 PM   #7
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Trotter Mobility Chair size 3 would see him through 170 pounds. While it's a chunk of change (just at $900 for a basic model, extra for accessories like sun shade), it may be covered, at least in part, by insurance. We got insurance to pay for both a manual and an electric w/c for DD because doing so allowed her the freedom to interact with our family. Since he needs it for social situations, and for long walks, and not having it would inhibit his ability to interact with the family during long trips, it may not be such a stretch.
Or, you may be able to find a place to rent one from. Good luck with your search.
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Old 03-08-2013, 08:38 PM   #8
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Trotter Mobility Chair size 3 would see him through 170 pounds. While it's a chunk of change (just at $900 for a basic model, extra for accessories like sun shade), it may be covered, at least in part, by insurance. We got insurance to pay for both a manual and an electric w/c for DD because doing so allowed her the freedom to interact with our family. Since he needs it for social situations, and for long walks, and not having it would inhibit his ability to interact with the family during long trips, it may not be such a stretch.
Or, you may be able to find a place to rent one from. Good luck with your search.
More great advice! Thanks so much!
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Old 03-11-2013, 01:09 PM   #9
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I lucked out...Walker Mobility has a smaller child sized wheelchair that goes up to 150 pounds... it is much more in line with his size.

While he still won't be able to nap...and we will still have the melt downs...the mobility portion of it will be taken care of.

Thanks for all the suggestions...but purchasing one is out of the question. We would never use it at home, and since we drive to Disney, we have to have plenty of room for our 'stuff'. His insurance will not cover it... right after the accident, he was still unable to walk (partially paralyzed). Once he left the hospital he was no longer covered for a wheelchair...since he was expected to be able to walk within a year...

(love state run insurance!)


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Old 03-12-2013, 07:40 AM   #10
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I lucked out...Walker Mobility has a smaller child sized wheelchair that goes up to 150 pounds... it is much more in line with his size.

While he still won't be able to nap...and we will still have the melt downs...the mobility portion of it will be taken care of.

Thanks for all the suggestions...but purchasing one is out of the question. We would never use it at home, and since we drive to Disney, we have to have plenty of room for our 'stuff'. His insurance will not cover it... right after the accident, he was still unable to walk (partially paralyzed). Once he left the hospital he was no longer covered for a wheelchair...since he was expected to be able to walk within a year...

(love state run insurance!)


Nini

Glad that it's working out for the mobility.

On the napping front - the First Aid stations have always been very good about allowing us to go there for breaks when DD needed one. A 30 minute nap was usually all she needed. I don't know if they'll work for you, but it's always an option.
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Old 03-16-2013, 07:10 PM   #11
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I lucked out...Walker Mobility has a smaller child sized wheelchair that goes up to 150 pounds... it is much more in line with his size.


(love state run insurance!)


Nini
So far it is a partial happy ending! Is there some way to avoid melt-downs by adapting the old strategies for this chair?
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Old 03-16-2013, 07:42 PM   #12
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Old 03-21-2013, 07:33 PM   #13
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See if you can rent a sun shade for the wheelchair which might give him a sense of privacy.

I second the suggestion to try the First Aid stations for a short rest. I took my son, who has autism, into the one at MK when he was 13. They were happy to give me a room to clean and change him; it had a bed and a restroom was available as well. I also popped into the Baby Center and gave him a clean-up. They didn't seem to be put off by his size and age.

We also like the Companion Restrooms in all the parks (and DTD), not just for the usual, but because you can take 5 minutes in privacy to cool off and regroup if that's all you need.
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